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  1. NelliePledge

    What is Lyme disease and what are the symptoms of the rapidly increasing illness? ITV report (UK)

    They seemed to be starting to take it a bit more seriously last year when public health England actually published a public information leaflet.
  2. NelliePledge

    BBC article about vagus nerve stimulation study

    https://www.bbc.co.uk/news/health-49157343 Apparently this is aimed at over 55s to help with autonomic issues that increase with ageing.
  3. NelliePledge

    Hopeful Medicine - Concerning article on NHS 10 yr plan,by DietDoctor.com

    Stuff like this does make sense from his T2 Diabetes perspective. Until GPs are better educated about ME there’s always going to be a high risk that they will try to deploy this type of approach with people with ME that’s already the status quo I don’t think this particular article will make the...
  4. NelliePledge

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    Except he has 500k twitter followers so it may be worth one of his academic peers approaching him just in case he is more open minded than that Dunno if anyone on here has a link in to any of the Harvard Group?
  5. NelliePledge

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    Someone should highlight Pinkers intervention to Ron Tomkins possibly discussion between fellow Harvard people may be useful.
  6. NelliePledge

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Yes I could be reading too much into it. It’s just the Kelland Reuter’s article whole point was the Cochrane issue so it struck me that the only new point in the whole thing was that one about Cochrane so possibly using similar tactics. Would be great if it backfired
  7. NelliePledge

    The PACE trial video series by A Broken Battery

    Was going to share it on local Facebook group @Adam pwme but someone beat me to it :thumbup:
  8. NelliePledge

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    I don’t think it’s trying too hard to argue anything it’s just rehashed old material with that snippet about the Cochrane editor backtracking on the previous guy’s decision - which in my opinion is the whole point of it.
  9. NelliePledge

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    I see Sharpe gives a special mention for online forums where the activists hatch their dastardly campaigns :thumbup:
  10. NelliePledge

    Bedridden For 11yrs And Cured Himself

    I wonder if he would be interested in getting involved with one of the ME research groups
  11. NelliePledge

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    so Presumably the whole purpose of the article is to get out that point about the Cochrane review and the new editor overturning the decision- Sharpe must think by making it known she’s going to overturn it it makes it harder for her to reconsider that.......maybe she isn’t fully on board yet
  12. NelliePledge

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Bubble and squeak article - It seems like a lot of left over stuff mashed together fried up and served again.
  13. NelliePledge

    More PACE trial data released

    These people just can’t see the irony
  14. NelliePledge

    EFT (Emotional Freedom Technique)...coming to a CFS clinic near you? & a possible advocacy opportunity?

    I’d like to be emotionally free from all this tripe they keep promoting
  15. NelliePledge

    Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases, 2019, McGregor et al

    May be a ridiculous question but If the purine metabolite is reduced does that mean there’s also more purine still going round in the system? On my postage stamp understanding it is the purine that causes the problems & pain in gout. Could this be causing pain in ME.
  16. NelliePledge

    ‘I can hardly breathe’: Exploring the parental experience of having a child with a functional disorder, 2019, Hulgaard et al

    I can hardly breathe. Or in more colloquial English. I’m gobsmacked at the tripe they’re coming out with.
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