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  1. TiredSam

    Marathon runner forced to quit work after developing ME claims diet change gave him his life back

    Call me a cynic but the first thing I look for now in articles like this is "what are they selling?" Nice publicity for Yorktest this time. Apart from that another n=1 story, all kinds of stuff thrown together (rather than decently researched) by the journalist, including this: Fills column...
  2. TiredSam

    Action for ME GP webinars

    Ok, regular, moderate and severe. I have regular ME. That feels better already.
  3. TiredSam

    Action for ME GP webinars

    Having to call what I have "mild" is rather annoying, but it does need distinguishing from the much worse condition many are in. I suppose we could do what fast-food restaurants do when they want to avoid describing anything they sell as "small" and describe what I have as "regular" ME - but...
  4. TiredSam

    Personalised relaxation practice to improve sleep and functioning in patients with CFS and depression: study protocol, 2018, Vollmer-Conna et al

    I wear earplugs to sleep since my wife started snoring. I have tinnitus too, but it doesn't stop me falling asleep. My current earplugs are so good that I can't hear my alarm clock, but it wakes my wife up and she gives me a push so that's ok and serves her right for snoring. If she's not there...
  5. TiredSam

    Action for ME GP webinars

    Your "I told you so" T-shirt is being printed as we speak. Well to be fair they have said we can complete their survey.
  6. TiredSam

    Action for ME GP webinars

    Thankfully I don't live in the UK and don't have to see a professional who has been "educated" by AfME. If I did, this would affect me, as I am a mild sufferer. Here is a question I asked of AfME on 3rd April: Unfortunately it remains one of the many questions put to AfME on this forum which...
  7. TiredSam

    Personalised relaxation practice to improve sleep and functioning in patients with CFS and depression: study protocol, 2018, Vollmer-Conna et al

    I think I can out-odd you there. I do chess puzzles on my smartphone every night until my eyelids droop.
  8. TiredSam

    AFME seeking feedback on NICE

    AfME seem to be refusing to take a stance. Assigning percentages to the answers of a survey of members (who aren't very well informed if AfME's webpages and the discussions permitted on their forum are all they have to go on) and calling it "data" is a long way from saying "PACE is a pile of...
  9. TiredSam

    AFME seeking feedback on NICE

    Indeed. S4ME and its members are more than capable of responding to NICE without it having to be through an AfME survey. On the subject of asking people to respond to a few questions, there are a few unanswered questions around this forum awaiting your attention @Action for M.E.
  10. TiredSam

    David Tuller: Trial By Error: BMJ Still "Looking Into" Lightning Process Paper

    Well thank goodness the job landed in the safe hands of Richard Horton then, otherwise who knows how the Lancet might have disgraced itself.
  11. TiredSam

    Stamina levels before ME/CFS?

    That video has just inspired me to stay on my sofa.
  12. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    So after banning himself from twitter for a week MS can't resist having a little peek on Sunday afternoon. Continues to struggle with the English language, as "stastician" isn't a word. Something must have annoyed him.
  13. TiredSam

    Submission to the Scottish Parliament by Jonathan Edwards

    I read it through in one go and thought it was excellently written, obviously with the reader in mind. I didn't read anything I would change. One of them is a woman with a fat arse on the telly and the rest of them are something to do with her.
  14. TiredSam

    Article by Paul Worthley

    Disappointing that AFME was allowing such drivel to be published in their magazine as recently as this year.
  15. TiredSam

    Article by Paul Worthley

    @alktipping just between you and me at one point I did find myself googling whether "bollocks" was a metaphor.
  16. TiredSam

    Article by Paul Worthley

    I don't think there's anything wrong with seeking spiritual support whether you are well or ill if that's what you're into, I'd just like to see a strict separation between spirituality and medicine. This guy seems to think that because he's a doctor, that entitles him to branch out into the...
  17. TiredSam

    Article by Paul Worthley

    Is there a difference between "believing the patient" and "believing in the patient"? I expect to be believed. I don't give a toss whether my doctor believes in me, that's my mother's job. Thanks, but I never thought I was, where did you get that idea from? Yes, we know, get on with it. Oh...
  18. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    There is now - Sly Saint's Law
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