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George Monbiot in the Guardian: Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? How could this happen in the 21st century? This question could apply to many issues, but this one sends you reeling. A brilliant and lively young woman with a common...

Medscape: Does Mast Cell Activation Syndrome Underlie Multiple Ills? https://www.medscape.com/viewarticle/does-mast-cell-activation-syndrome-underlie-multiple-ills-2024a1000isk?form=fpf Depending on one's perspective, "mast cell activation syndrome (MCAS)" is either a relatively rare...

I agree with some other comments above that this largely depends on what kind of infection you have. I'm not sure it is a good idea to try to quantify this in percentages. Most often people will get the common cold probably (at least up to the past few years), which doesn't induce fever so much...

The truth behind Miranda Hart's controversial chronic fatigue cure claims - as the star is accused of peddling pseudoscience https://www.dailymail.co.uk/health/article-13965513/Miranda-Hart-controversial-Lyme-disease-pseudoscience.html Vikings star, actor Jennie Jacques, who developed ME in...

I have no idea if it is common or not. I had no fever at all during glandular fever (which was my trigger), even though I had a whole range of other symptoms, including some less common ones, like the swollen eyelids that even obscured my vision one morning. My lymph nodes were so swollen that...

They used Fukuda, CCC and the IOM criteria.

Abstract The pathogenesis of Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) remains unclear, though increasing evidence suggests inflammatory processes play key roles. In this study, single-cell RNA sequencing (scRNA-seq) of peripheral blood mononuclear cells (PBMCs) was used to...

The article has been updated. There is still bad info on exercise therapy etc. They have changed the name to ME/CFS though.

Mine started with EBV, I had no health issues before. I was ill with mono for 3 weeks. I still tried to live a normal life during the first week (even tried to work out) but it just got worse and worse, so eventually I had to stay in until I "recovered" because I was too ill. After three weeks...

I have posted a Hungarian article about ME/CFS in the Visegrád thread (the article is translated to English in my post). There is an ethnic Hungarian doctor from Targu Mures/Marosvásárhely (Romania) talking about the disease in it, so I'm sharing the link to that thread here too, maybe someone...

There was an article a couple of days ago in Nők Lapja, a well-known women's magazine about ME/CFS. It is a mixed bag, starts pretty badly but then it talks about PEM, pacing, orthostatic intolerance, things that are basically never mentioned on the Hungarian internet (neither by the media, nor...

Just skimmed through it to see what it says about GET for example.

B. Sue Graves • Mitsu Patel • Hailey Newgent • Gauri Parvathy • Ahmad Nasri • Jillene Moxam • Gurnoor S. Gill • Vivek Sawhney • Manish Gupta Abstract Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is a complex, chronic condition marked by persistent, debilitating...

I only saw Trainspotting as a teen, so not very recently but I remember there were some pretty disgusting (drug-related) scenes in it and my first thought was maybe he somehow wants to show the ugly or shocking side of the disease or similar. But I'm probably wrong as this is the paragraph...

I can't really eat a lot in a bad crash but I simultaneously crave carbs like crazy, especially sweet things, pastry etc. It feels like my body is telling me to get more energy right now.

I think it is probably a US vs Europe thing. Here people go to medical school directly after secondary school too but is 6 years (plus specializing afterwards).

Maybe about a year ago someone in my group, a recovered covid long hauler asked me about this. She was very interested in Chinese medicine and recently started learning massage as a hobbi (maybe she even said she had found massage helpful, I don't remember now). She asked me if she could offer...

Press release: COVID may trigger chronic fatigue syndrome “Our results offer a snapshot in time, and find that in 2022, 14% of people who had ME/CFS-like illness developed it after COVID,” said senior author Jacek Skarbinski, MD, a research scientist with the Kaiser Permanente Division of...

Posts moved from United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media ______________ The Times: Patients with severe ME at risk of starvation, doctors say Nearly 200 health professionals have written to the health secretary saying that patients with the...

Ádám Dénes neurobiologist researcher was asked to comment on a long covid study on the channel RTL (link to video). I've mentioned Dénes several times here, he is one of the (neuroimmune) long covid researchers here but he also seems to be as unaware (or ignorant) of ME/CFS and post-viral...