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Fatigue due to long COVID-19 requires slowing down Scheibenbogen and dr. Martina Lukas explain PEM and pacing and staying within your energy limits. Edit: I just realized that this is a Turkish news site actually. ”Shortness of breath, muscle aches and heart palpitations can also worsen if you...

195th General Assembly of the Hungarian Academy of Sciences - The long COVID syndrome: Lingering illness after the pandemic Date: 5th May, it can be followed online. Programme: My comment: some of you may remember that they organized a long covid symposium a few months ago. It was mostly...

Edit: Countries that are included in this thread in alphabetical order: Albania, Bosnia and Herzegovina, Bulgaria, Croatia, Cyprus, Greece, Kosovo, Moldova, Montenegro, North Macedonia, Romania, Serbia, Slovenia I used the broadest definition of SEE here but there are overlaps with other...

I feel you. I think my family still treats me and my disease relatively well, compared to some of the stories I saw in my own ME/CFS group. They never disbelieved me for example or told me to just get myself together or thought the problem to be psychological. But it doesn't really go beyond...

News: the 2nd Annual Flat Earth Award by the Skeptic Society goes to Gábor Varga, the guy who pushes c-peptide as a cure-all drug (now advertised as a "cosmetic spray" for legal reasons after constant battles with the advertising authority). Well done, basically he is the No. 1 quack in the...

Leronlimab and the pharmaceutical company CytoDyn who investigates it don't really have a good reputation: CytoDyn Hit with Two Clinical Holds as Optimism Appears to Wane "In May 2021, the FDA issued an unusual public scolding of the company, accusing it of misrepresenting clinical trial data...

Source: https://finance.yahoo.com/news/hidden-within-us-140500557.html On April 23, 2022, World Book Day, Dr. Samuel Mann, a physician, researcher, and prominent hypertension specialist at New York-Presbyterian Hospital / Weill Cornell Medical College, will release his latest health and...

Well, to be honest, Semmelweis University (regarded as the best medical university in the country) went ahead and started a Traditional Chinese Medicine BSc programme. Google Translate And if you want to hear something really crazy, the Minister of Human Capacities (this is where healthcare...

A couple of weeks ago I wrote something about the thermal bath/spa industry and that it seems they are the ones mostly after long covid patients in Hungary with all these ads of their special post-covid packages. Well, looks like I wasn't wrong. The National Academy of Sciences and the Ministry...

I remember when professor Janszky gave that presentation on ME/CFS at the long covid symposium of the National Academy of Sciences here, then he immediately brought up the wide range of the reported prevalence of long covid (his examples were between 10% and 60% I think). He talked about this is...

There is also a similar one that has been recently approved by the Hungarian Medical Research Council: Title: Detection of certain components (proteins, RNA) of SARS-CoV-2 in COVID-19 and post-Covid-19 by organ Applicant: Semmelweis University MSc II. s. Institute of Pathology Supervisor: Dr...

I often also see this as: motivated, competitive, aggressive Type A personality = patients who don't agree with me about this CFS thing. But otherwise yes, you can fit almost everyone in those two categories if you try hard enough.

An update of what is going on advocacy-wise (not much right now but maybe soon): Maybe you remember that after Evelien Van Den Brink talked about ME/CFS in the European Parliament, a Hungarian MEP appeared supportive of the cause and when I messaged him, he offered to talk to the Secretary of...

She seems to be intrigued by this topic so I'm crafting a polite message to her about the shift in how ME/CFS is viewed and treated currently and see what happens. She seems to be relying mostly on these articles circulating on the web, so I'm not 100% sure about her own views. Maybe it's BPS...

Long, two-part article about long covid that mentions ME/CFS a lot and talks about PEM. Written by a GP and psychoterapist who periodically writes similar articles on long covid. This one is based on several recent "6 tips to beat long covid" type of English articles. You may remember some...

About malaise: whenever I use PEM in my articles in Hungarian, I give the original English name and a short description too, so people can understand (and I always link a more detailed explanation that I have on my page that includes the different levels of severity and pacing, etc). But I also...

Yes and I of course didn't mean it in a way that you can recover from cancer with your willpower but I meant it as an example of a disease where it is possible to recover, so it actually makes sense to wish cancer patients "get well soon". And people probably have something like that in mind...

Defamation Lawsuit Against Netflix Over ‘Afflicted’ Docuseries Allowed to Proceed A state appellate court has turned down Netflix’s bid to dismiss a lawsuit brought by subjects of docuseries Afflicted who say they were defamed when the show misrepresented their chronic illnesses. In a...

My ME brain kicked in and read this as: "What about just naming it after a planet?" :whistle: And in that case my recommendation would be Pluto with all the controversy around it. (Is it a planet, is it not a planet?) :alien:

I wasn't very young when I got sick (it happened in my early thirties), but I still had this experience. I've never made a secret out of my disease but recently I posted about my illness on my personal Facebook wall and how it is chronic and how terrible it is when people think it is something...