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Yes, but I also have anxiety and tend toward hypervigilance. The anxiety accompanied a worsening of ME symptoms so a bit chicken and egg...

This is also discussed on this thread; https://www.s4me.info/threads/possibility-of-me-or-pvfs-after-covid-19.14074/page-30#post-269795 And I have just posted the last two paragraphs of this article on the thread, which was post #591

The penultimate paragraph was interesting and hopeful. The last one was thoroughly relatable" "Until now, much of the response to covid-19 has been about preventing deaths, but hospitals are beginning to establish clinics to follow-up the survivors - including those who are still ill. "I'm...

Good point, but would have expected it to be om their website as that is updated more often

Just downloaded this week's New Scientist (thank you to my local library) and it seems really odd that so far I can see no mention of this in the news section. Or on the website. They are normally all over genetic projects.

Clicking on the tweet leads to a message that says "this tweet is from an account that has been suspended"

Thank you :thumbup:

That's great, thank you :thumbup:

This took me to a tweet...

Can someone post Tom Whipple's piece? I have maxed out my 2 free articles. Thanks.

I love my TENS machine and find it has been incredibly helpful. Physio who originally suggested it (for chronic post operative pain, not ME) claimed it was only worked for 25% of people. For once, the odds were in my favour! :)

Yes! THIS and when you wake up you actually feel worse

Thank you @Invisible Woman . Glad to know i was making some sense! Excellent point about seeing GP's - I shall try and remember to make this point to mine when I see her next. None of it is good enough and it is doubly frustrating as it has gone on so long and shows little sign of changing.

I can totally understand that, and my GPs are clearly drowning in work, but I find it frustrating that once again ME comes bottom of the pile and it's not seen as serious enough to be priority reading. With no treatment and no way of identifying who might develop it, surely more than having it...

I actually did this and got the ME Association to send a copy to my Practice. One GP told me he was too busy to read it and another said it was still on her desk to read...

This was also reported on Radio 4 Today and the NHS representative advised the these "hidden" waiting lists are published regularly and that the majority of patients recover significantly. Only one of the people from this article was included in the piece.

I haven't listened to this yet but I will as I find the all or nothing approach to some of these drugs frustrating. After surgery I refused to have morphine when I came home as I knew it could be addictive and didn't want to risk it. My GP has provided short term courses of Tramadol when...

For those who don't do/like pacing; what management strategy - if any - do you apply? Genuinely curious as to how different people manage their condition.

I've just bought a copy of this. Am having a quick skim read before a proper in depth study but so far it has a wealth of information and seems to be answering a lot of the questions I have about pacing. I should also point out it is A4 and 1/2" thick!!

I had it suggested to me that "finding one's edges" might be better than boom&bust. Quite like it.