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    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    What would Rowe and Montoya make of this? Words simply fail me...
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    UK: IAPT-Employment Adviser pilots - some information & docs

    Indeed. It is a different breed of person. Esther McVey recently addressed Scottish Parliament ( SNP picked up and politicised the "rape clause" in the child tax credits fiasco) and told them that rape victims should be grateful for the " free counselling" the benefit interview would provide..
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    Michael Sharpe skewered by @JohntheJack on Twitter

    "At least in the short term" to me is the worst part of this thread. This infers that adverse effects/ harm being done were well known...
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    Forward ME Group – Bodily Stress Syndrome

    It is the comment that NE has nothing to fear from MUS i think See the latest updates on this thread from other place Lilpink explaims it better than i can...
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    Forward ME Group – Bodily Stress Syndrome

    It us complicated and i may have got this wrong The problem is with 2 different sets of recoding many illnesses, especially chronic illnesses will potentially have a somatic code added to their illness ie be designated under MUS. They will then essentially be " parked" with no investigation...
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    The ME Show

    Some suggestions Jane colby at Tymes Trust. Cara Tomas - young researcher (with julia newton ) Jonathan Edwards Cat Bell ( set up facebook support group for mothers of children with ME and went through significant medical issues both herself, and with her daughter - both are inspirational) A...
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    ME Association - Forward ME – Meeting with Dr Diane O’Leary about possible WHO coding changes - 21 April 2018

    This is linked to the IAPT thread. When taken in cinjunction with @Sly Saint 's posts on mental health conglomerates, it is very concerning.
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    How do we make sure ME prevelance numbers are as accurate as possible?

    Rates vary depending on researcher- EC has very high rates, but little of her research seems to be on ME. There is a huge conflation with chronic fatigue. Definition and diagnosis make this more difficult than would first appear.
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    Article: The Corruption of Evidence Based Medicine — Killing for Profit

    http://www.pulsetoday.co.uk/clinical/prescribing/guidelines-pushing-epidemic-of-misinformation-on-to-gps-warns-cardiology-expert/20031444.article
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    Bragée ME/CFS-Center in Sweden is (probably) closing

    Sorry to hear this. In a world of under provision, it is hard to understand how facilities could close. I feel sorry for those who may have benefitted from any services, this may be hard on patients and families. My thoughts are with them
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    A couple-based psychological intervention for chronic fatigue syndrome [In progress, April 2018]

    Any relation to Amy?
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    Pharmacological activation of AMPK and glucose uptake in cultured human skeletal muscle cells from patients with ME/CFS (2018) Newton et al

    If the underlying signalling mechanism is not identified then tweaking AMPK activation may cause more harm than good. Would having low intracellular ATP not imply that its loss has triggered AMPK activation and CDR? Homeostasis at lowered rate will continue until ATP depletion is addressed...
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    MUST Fight MUS

    I think Sharpe is drawing a twitter storm as a diversionary tactic - this is preserving and extending his infratsructure
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    MUST Fight MUS

    @Russell Fleming ,@Action for M.E. there needs to be significant publicity regarding this development
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    MUST Fight MUS

    Update on PR today http://forums.phoenixrising.me/index.php?threads/mus-pps-services-and-integration-into-nhs-primary-care-whats-happening-across-the-uk.48710/page-34
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    Quirky/funny research related things

    Found this and thought it mught be appreciated here. Feel free to move to more appropriate category
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    Epstein-Barr virus protein can “switch on” risk genes for autoimmune diseases

    I think this is a different paper? http://www.cell.com/immunity/fulltext/S1074-7613(18)30124-9
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    Article: The Corruption of Evidence Based Medicine — Killing for Profit

    Sound familiar? Didn' t catch presentation but will catch up at weekend
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    Pharmacological activation of AMPK and glucose uptake in cultured human skeletal muscle cells from patients with ME/CFS (2018) Newton et al

    I hate my phone - the keypad numbers are too small!!!!
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    Pharmacological activation of AMPK and glucose uptake in cultured human skeletal muscle cells from patients with ME/CFS (2018) Newton et al

    Cellular ATP content bring low is what Myhill, Booth et al found, together with low cellular magnesium bound ATP ( not active without Mg)
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