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Nurses cost more, so I doubt it.

Yes they are pulling the funding, ther was a tv news feature on all the patients who say they rely on the service.

This is an evergreen, headline quote. It needs to have its own campaign, it needs to be hashtaggee, posters the lot.

I disagree, it asked if you returned to a full training programme? and if so how did you get there? It also asked what advice you were given and did it help. it is a survey of semi/professional athletes

Oh I don’t know if this is useful, I bought a laundry egg last year. I was finding it difficult to hold and pour laundry liquid. The ecoegg is made of hard plastic, it’s a bit noisy if you sit near your washing machine, but the cleaning balls you fill it with are lasting me a good 3 months, at...

Oh I don’t know have I conflated it? He should.

Since the Wust paper, the Decode ME side project with the blood signature, and Decode ME about to conclude, I’d prefer to keep any campaigning powder dry until the medical evidence picture is clearer. NICE is a dead duck and always will be until we have the medical evidence.

I’m horribly cynical, but why would I put my face and name to this campaign when it probably won’t work? Actually, I don’t want to put my face and name to things, I enjoy being a private citizen. When will this trend of showing “the reality of the illness” pass?

They’re always working on developments, they seem reasonable (and are also ill) even if they say they looked into it and x,y,z were the stumbling blocks….I think they’d be helpful.

I don’t know anything about trade secrets or patents, but I’d consider having a discussion with the Visible team, they seem decent people and might have looked into this, or not.

I’d reply but all I have is *sigh*

No money with new ME Delivery Plan https://archive.ph/a3iYo

Moved post I’ve seen a quote from Sonya Choudhry on socials saying we need funding alongside the plan.

Probably not. Isn’t it just a Trojan horse? I’d love to talk to some of the old RCP lot.

There is this “magical” thing you can use called honesty and empathy. Where you say “we just don’t know enough about it for me to suggest anything, I’m sorry, I understand you want an answer, I don’t have any” but that’s impossible for a doctor to say. It’s hard to know whether it’s more...

I think it was the stomach consultant, because you can’t ever bypass the stomach without it seizing up and being irreparably damaged according to him.

Yeah, that’s what we have to deal with isn’t it.

I’m so sorry for your loss x

It’s an anecdote for @Jonathan Edwards - well really for the Dr who insisted Maeve Boothby-O’Neil would have died in 8 months.

https://incarsafetycentre.co.uk/products/ez-on-harness You can buy this for £200 lying-down harness.