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I like the story of how the spoons thing started. I like how it relates a common broad experience of limitations that is recognised and shared in circles of people with non-ME/CFS conditions. I love being able to share something with people who have other life limiting conditions which are more...

(Um, I may be misunderstanding your question but) isn't the blue/cyan/teal colour on figure 5 the healthy controls? is that what you're asking?

most important: stop caring. Most people like you better for not showing them up. So long as you don't smell or scare small children, a smile is the most attractive accessory. Save your energy for that. (Sounds trite but is true)

I've never "dried" my hair, never have mirrors in the house (a window with light behind you suffices to check you haven't put your undies on your head or something), and never have clothes that need ironing (unless hanging them up or laying them flat suffices ... or the old trick with silk...

I have a lot of trouble with my teeth, especially since ME/CFS (ETA: tho I can't say that this means anything for any other PwME). I went to three separate new dentists (first to be closer to where I live, second because I was still in pain and we hadn't completed her whole plan but I was away...

I'm very interested in this auto inflammatory lead. Please continue. (On a purely personal note: I'd especially like to know about any blood tests that might remain at variance from the norm even when not in the middle of a crash. Would be a dream to have something that easy to check.)

I'm at my first year now. When I try to list my symptoms I always forget the most important one(s) and go on and on about any minor niggles. Sometimes, (ETA: especially on 'good' days,) I feel like I must be a hypochondriac. Surely, if you can't pin down your major symptoms?!? (edit: deleted...

I'm looking for the M.E. Moments thread on PR, or here, and can't find it anywhere. Is it my brain or is it gone? Miss it.

I take it you have the help you need. Let me know if more is needed?

I'm so glad to hear it! I need to get the nerve up to do this. I'm one step closer now. To be honest, I'm afraid of telling anyone about ME in relation to me. I tend to say very little about what's happening to me and find it easier. I thought the Maddie cartoon would be great when I first saw...

Might not be the right place to say this but I have been thinking more and more that depression is a symptom and not a diagnosis. There are various mechanisms for it to occur and one of them might be that thing people refer to as Real Clinical Depression (someone here will have the best name)...

Thank you TiredSam, I wasn't going to read it (still need to be selective on days when I have reading spoons) but, you're right, good article. Sorry @Andy I ever doubted you. Thanks.

:(:hug:

Thanks for all of this. I found myself giving a really long rambling reply with lots of personal details and then realised this is not the members only section. And I don't want to hijack the thread. But very useful, and in many ways relevant to me. Will try again with my reply when my brain is...

Edited to remove personal queries and stick to the point: Not sure myself. My thought is that if protein can make it through then some of the other nutrients will be similarly challenged in getting absorbed. You make me realise that the question why might that even happen needs to be answered...

I agree with your first half but not with the last para. I don't think we can segment the population based on food sensitivities. I think it's a parallel discussion. I also think that food sensitivities tend to confound the point that the microbiome might be affecting, even effecting, our...

My thoughts too. I have done some thinking about FMT as a possible worth it thing to try myself but get stuck at the who should the don't be stage. Hubbie is young enough, fit, healthy, great family, long lived most relatives, few congenital conditions nor depression nor similar issues in the...

Nice list (in the link labelled 'here'). I'd love it if more people used them. Except 8, 11, and 12. They're not awful but I'm just tired of, and therefore over sensitive to, any implication that I should be getting better soon or doing more. I say that to myself too much already so hearing it...

Oh, and I loved my digital tracking device. It meant I didn't have to remember to log activities, nor focus on illness and symptoms when I didn't have to. I wore it 24/7 and it meant I had objective logs instead of just my word for it (a huge part of taking it seriously and learning to manage...

“Healthy privilege allows healthy people to assume that their experience is ‘normal’, and to be unaware that coping strategies that work for them will not work for someone dealing with illness.” This stood out. (ETA: Though I agree that I dislike the name calling inherent in the 'healthy...