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Some of the survey results Reformatted as lost original formatting when pasted.

I have never understood why authorities and consumers allow insurers to exclude mental health disorders from health insurance cover. Is it because they believe mental health issues are easier to fake or that they are somehow self inflicted? In general severely life disrupting mental health...

I used to find that a sudden drop in my mood, with no obvious situational trigger was an indicator of immanent worsening of my ME symptoms, a sort of aura warning of PEM. Once I decided it was probably a physiological issue, rather than psychological, it was quite easy to ignore psychologically...

I can’t now access the article without registering, though accessed it before. However I could beneath the various login windows see there is now just one comment. Is this the one you meant @Solstice that makes little sense?

Presumably if FND is a positive diagnosis, this implies that there is a significant continuity between its various manifestations. For example this might seem to imply that functional epileptic seizures are more closely related to functional leg weakness than say to epileptic seizures with an...

I am struggling to see any comments below the Pulse article, do I need to be signed in or registered?

A friend has been diagnosed with FND but regards it as a synonym for ME, so at least she is aware of a possible link, however presumably there are some people, presumably an increasing number, of people, who would fit an ME diagnosis receiving an FND diagnosis, but have no knowledge that ME even...

I am in a bit of a fog following a bad night’s sleep last night, so though feeling positive, I was struggling to understand the nice NICE announcement. I hope you get your pain under control, and catch up on your sleep. Especially with all the work you have put into the guidelines process, both...

I think the sentence can be read in two very different ways: NICE had the Guidance Executive meeting yesterday and decided to publish next week NICE are having a meeting of the Guidance Executive next week, and publication will occur at an as yet unspecified time after that Unfortunately my...

For some reason I have been struggling to understand what this actually announces. Am I correct in understanding that NICE, having had a meeting of their Guidance Executive yesterday, decided they intend to decide to publish the new guidelines at their next Guidance Executive meeting next week...

Too much for me to read in one go, but I did jump forward to the Conclusion, which is more of a summary:

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Thank you @Skycloud and @Kitty for your useful comments.

Yes it was a Tramper. Thank you for the mention of the other hire places. The Peak District hire places are handy for me and I go to a couple anyway, but the others you mentioned in Nottinghamshire, etc are a bit far at present. The intention is over time to try out different options to see...

This week (Thursday) I tried out a hire scooter on a local walking trail, along a former railway line (the Tissington Trail). I coped with the physical and cognitive demands much better than I expected. Without intending to be out so long we went some four miles and were out for a whole hour...

Although ideally we need research with objective outcomes, electronic activity monitoring, heart rate, etc, realistically in the short term, until there are agreed biomarkers questionnaires will also still be used. Consequent we need agreed symptom lists/symptom profiles and self rating scales...

I vaguely remember a study on depression from well over forty five years ago, I can not remember the details or how good a study it was, however I thought the findings telling. They were testing the hypothesis that people were depressed because they were irrationally pessimistic, but came to...

Thank you @Solstice, I started the process, but put off proceeding when I was asked to register, intending to come back when more cognitively alert. However though I have some German, your lists will be very helpful in priming my vocabulary.

Although an interesting starting point, surely this sort of study needs large sample sizes to produce meaningful results. Acceptable definitions of ME/CFS are essential for meaningful results and at our current stage of knowledge comparing the results from people diagnosed under different...

Well let’s hope the new ME/CFS Guidelines are published by then.