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And though temporal proximity is neither necessary nor sufficient to prove causation, a documented medico/physiological event associated with the onset of ME in some 75% of cases (happened to read that figure cited today and used it here out of laziness, but think it is probably inaccurate) is...

Early on in the course of my ME, I was perfectly willing to consider a bio psychosocial model for my condition, indeed I did not really care what the aetiology was as long as I found a way to get it treated. Participating in a research project looking at the impact of a specific diet supplement...

I have lost track of what has been posted, but his family have confirmed on Facebook that Holger has now been returned to his normal accommodation.

A bit of a tangent, but is there a difference between the stigma of a psychosomatic diagnosis and the stigma of other psychiatric conditions? Inherent in the diagnosis of a psychosomatic condition is the assumption that the patient’s insight and self reporting are faulting and untrustworthy. I...

Wasn’t there a previous thread here about an online questionnaire that turned out to have been put out by a specialist service aimed at their current caseload that seemed to be fishing for support for CBT/GBT?

I have been juxtaposing on social media that the so called ‘Freedom Day’, the 19th of July, when the UK drops most of the remaining pandemic restrictions, will be for me ‘back to not going out day’. This is partly for selfish reasons given there is still a small but finite risk of me catching...

A Times article on the relationship between Long Covid and vaccination, which seems to suggest that though the chances of Long Covid are lowered by being vaccinated, Long Covid is still occurring at significant levels in people who have been vaccinated. However I have not read the full article...

It is at times like this one feels so helpless. Do many in the whole edifice of medicine understand that cases like this are a significant disincentive for people with severe ME to interact with the medical system? How is it possible in the twenty first century that people claiming to act in a...

Sorry, here follows a self indulgent tangent: I find the whole idea of mitochondria fascinating. That they have distinct DNA to the rest of what makes up our body, that this is inherited only through the female line, ie it comes from our mother’s, mother’s mother’s mother’s and so on and that...

The ‘Help Holger Now’ Facebook page has just posted the following: “They are thinking forced removing Holger according to LPT. They say he has a serious mental disorder. There are two doctors from Vaggeryd's health center who have decided this. They never met him before. Holger's regular doctor...

We define certain symptoms as ‘persistent central sensitization (CS) symptoms’ without any objective evidence or verifiable theoretical justification, then look for those specific symptoms and conclude because we found them Long Covid is a unitary condition involving central sensitisation...

Depressing findings, but I wonder what those figures would be for BPS researchers looking at ME/CFS, FND, MUS, Long Covid, etc. [added - what is the impact of using subjective self reporting in surveys of research malpractice and scientific fraud on the results. Would objective outcome measures...

Thank you for this link. So the government is not suppressing these figures, it is just they are not being widely reported. It looks like in the UK now more vaccinated people in the over 50s are dying from the Delta variant than the unvaccinated. The figure I cited above for some vaccines only...

Just came across this figure, but it was quoted without any source: “A reminder: the Pfizer and Astra Zeneca vaccines are only 65% effective against the Delta Variant” The Delta variant is now the dominant strain in the UK.

The only figures I have seen were just very small numbers in one small area; something like four out of nine deaths in one hospital (absolute figures not a proportion) were people who had been fully vaccinated (two jabs more than two weeks before getting Covid). Also these were not official...

Moved posts Have found this article suggesting vaccination may not reduce the risk of Long Covid, but as always it is not clear how much reliance to place on a newspaper article, especially one with a potentially misleading headline, see No evidence vaccine reduces risk of Long Covid, says...

In the UK there are people who have had both injections and still died from Covid even after the two week period following the second jab, though this is obviously much much less likely than with people who haven’t had the vaccine. It seems that the figures for this are not being published. The...

Yes, what @Trish said.

I would be happy to to sign such a letter, though I struggle to collate information and ideas so don’t think I could currently draft or edit such a letter. For me there are two main issues: Firstly the issue of child protection, and that undertaking an intervention with children that instructs...

Can’t be certain that this would work. I had thought that Prof Crawley’s SMILE study would be the reductio ad absurdum of this approach, and lead people to question this whole use of subjective outcomes in unblinded trials relating to GET/CBT, but low and behold seeming rational intelligent...