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  1. Kalliope

    Menopause and ME - what's your experience?

    Thank you for answering @TigerLilea and interesting to hear you didn't notice any difference. Sorry if I worded it in a clumsy way, I was thinking of this paper "Early menopause and other gynecologic risk indicators for chronic fatigue syndrome in women"...
  2. Kalliope

    Menopause and ME - what's your experience?

    I was asked today whether I'd heard if any ME patients got better or worse during menopause? I've only heard that ME patients seems to enter menopause a bit earlier than what's usual, but not if it might have an effect on the disease itself. Said I'd ask on this forum to see if someone would...
  3. Kalliope

    Mirror: Woman, 28, goes from keen runner to year in dark room because of severe disorder

    Woman, 28, goes from keen runner to year in dark room because of severe disorder Jonathan admits he has seen his beloved fiancée’s character slowly slip away without any real support from the NHS in Wales. “The only things offered by the doctor were antidepressants, which made Natalie’s ME...
  4. Kalliope

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    GEN - Genetic Engineering & Biotechnology News: Chronic Fatigue Syndrome Blood Test Sensitive to Immune Stress
  5. Kalliope

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Article in ScienceAlert with comments from Ron Davis, Simon Wessely, Andrew Lloyd and Robert Naviaux : A Chronic Fatigue Blood Test Looks Increasingly Promising, But It's Still Early Days ScienceAlert reaches a huge audience. They have 9 million followers on FB.
  6. Kalliope

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    New blog post from David Tuller: Trial By Error: My Follow-Up Letter to Reuters Earlier this month, as I have reported, I sent a letter to the Reuters global editor for “ethics and standards” about my concerns relating to last month’s hit piece on ME/CFS patients and me. (I put those words in...
  7. Kalliope

    A general thread on the PACE trial!

    Forskning.no, a Norwegian news site about research, has had a couple of critical articles about the PACE trial, but today they have an article claiming the trial was let completely off the hook by Health Research Authority. Professor Wyller is interviewed, so is Ingrid Helland, leader of the...
  8. Kalliope

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Stanford Medicine: Biomarker for chronic fatigue syndrome identified
  9. Kalliope

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    EurekAlert: Biomarker for chronic fatigue syndrome identified by Stanford researchers
  10. Kalliope

    News from Scandinavia

    For almost 30 years, Norway had two ME patient organisations. One of them, MENIN, decided in 2017 to close down and to donate their profit to research into ME. This month they gave a huge donation on 2,1 million NOK (241682 USD, 216756 EUR, 187147 GBP) to the researchers Olav Mella, Øystein...
  11. Kalliope

    News from Scandinavia

    Professor Montoya has been visiting Store Sköndal outside Stockholm, Sweden. Stora Sköndal has been running an outpatient clinic for ME patients for several years. They have a biomedical approach, does assessment, treatment (which I believe is mainly about managing symptoms) as well as research.
  12. Kalliope

    ME-conferences in Stryn, Norway March 26-27th

    The ME parents, an organisation for parents to children with ME has shared a good summary of the conference on their blog: ME-foreldrene: ME-konferanse i Loen mars 2019 Sometimes they translate blog posts. I don't know if they plan to do that with this summary as well, but for now here's a...
  13. Kalliope

    Peace Arch News: White Rock woman shares her struggle with "horrendous" fatigue

    I don't think this article from yesterday has been shared yet on the forum? Nice to see coverage from Canada. White Rock woman shares her struggle with "horrendous" fatigue A report from the Myalgic Encephalomyelitis & Fibromyalgia Society of BC says that Canadian ME research is “essentially...
  14. Kalliope

    PLOS ONE pulls highly cited mindfulness paper over undeclared ties, other concerns

    When a paper like this gets retracted, what exactly happens with other papers that cited it?
  15. Kalliope

    medical professionals, psychologists, and researchers

    It is my impression too, that there might be quite a few health care workers with personal experience with ME. I've missed hearing from them. However, when I saw prof. Wyller's (known for a psychosomatic approach to ME) attack in 2017 on prof. Saugstad (doctor who has been standing up for ME...
  16. Kalliope

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    Excellent article in Medscape: "Milestone" Meeting Highlights NIH Efforts to Combat ME/CFS by Miriam Tucker The National Institutes of Health (NIH) held a 2-day conference on high-level science that is beginning to yield clues to understanding and ultimately treating the complex, multisystem...
  17. Kalliope

    News from Scandinavia

    Another letter-to-the-editor in the ongoing ME debate in the newspaper Aftenposten. This time from prof. Wyller Mentale teknikker er nyttig mot ME google translation Mental techniques are useful for ME Ten years ago, I made a hypothesis that automatic stress reactions are important for ME...
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