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Fréa Lockley: The establishment media has launched a vicious "war" on chronically ill people The media has upped the ante on a vicious and abusive war on chronically ill people. Doctors involved in the controversial PACE trial have lashed out, claiming they can’t continue their work because of...

Yet another response from another ME patient Fastlåste tankemønstre google translation: Thought patterns that are stuck The best advice I can give is to investigate for yourself. Independent scientists who take the time to go in and investigate find that the patients and researchers who...

Liselott Blixt - the politician who has been in the forefront for the motion, is interviewed in a local Danish newspaper. She says the motion has been an uphill battle and has met a lot of resistance. Ugeavisen Esbjerg: Liselott Blixt efter ME debat: - Jeg sad og tudede google translation...

Nina E. Steinkopf, ME patient, blogger and the initiator behind a petition against the national competence service for CFS/ME and their psychosocial approach (with over 7 000 signatures) has written a good response. Oppfatninger, ytringsfrihet - og et godt klima for ME-forskning google...

This was a good thread. You have to click on the link to read all of it. Sharpe gave a response

My Letter to Professor Hotopf About Bristol's School Absence Study Matthew Hotopf is a professor of general medicine psychiatry at King’s College London. He served as a peer-reviewer for a study by Bristol University investigators that was published in BMJ Open in 2011. The study involved...

The facebook post is now made public. What Larun wrote as a comment was: "I would be careful with my statements here Caroline. I have also reanlaysed the data"

The Danish newspaper Politiken had an editorial about ME yesterday. It's behind paywall, but perhaps someone here has access to it and can give a summary. The headline is revealing of its content though: Svigtet af samfundet Behandlingen av kronisk træthed er en skændsel Abandoned by society...

A feature over 9 pages about ME in the local Norwegian newspaper Stavanger Aftenblad. It's paywalled, so can't offer google translation, but here's a summary: The article tells the story of Rebecka, who got diagnosed with ME when she was 5. She is now 8. Her parents says it can be difficult for...

The Reuters story has been picked up in Denmark. My impression is that some people prefer that this article isn't shared, so won't link to it. The article presents the story as if activists have gotten the Danish Parliament (who recently voted for excluding ME from the umbrella term "functional...

Interview with Stig Gerdes, the doctor who helped the Danish ME patient Karina Hansen from Unrest, and who later lost his licence. Frederica Dagblad: Stig Gerdes efter afstemning i Folketinget: - Jeg fik ret google translation: Stig Gerdes after the Parliament vote: - I was right The former...

This giardia outbreak from 2004 infected over 5 000 people, which makes it the largest outbreak in Europe. Many have reported developing ME after the outbreak. Not sure why the researchers didn't include ME in this paper. The University in Bergen has written the following article about the...

Well, that looks slightly more useful than Wyller's recent study on simply letting the GPs make a guess.. https://www.s4me.info/threads/ebv-requisitioning-physicians’-guess-on-fatigue-state-6-months-after-acute-ebv-infection-vegard-bruun-wyller-team.8447/

Politiken has had some good ME articles lately about the motion in the Parliament on removing ME from functional disorders. Now they have received a letter to the editor by MD Lisa Vest Johansen about the frustration among doctors with these patients. It is rarely that the doctor, on his own...

Not at all, it was clear you meant it as a joke. I was just adding some info. :)

It was in Oslo she was heckled a few years ago, as was mentioned in the tribunal ruling regarding the PACE data when the researchers were asked about harassment. That incident was unfortunate, but I feel they are escalating the whole thing by hiring security guards.

This might not be the correct thread, but just read in a Facebook group that Trudie Chalder was recently in Norway, invited by prof. Wyller. There were security guards in the auditorium, apparently. Haven't heard anything about how it went, but was saddened to hear about the security guards, it...

Tjenesten og MEg was one of the four research projects who got funded via the Research Council of Norway's project BehovME, where users of research were invited to give suggestions for what kind of research projects the council should prioritise. Sintef and Fafo are cooperating on this research...