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  1. Kalliope

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Here is the full paper. I'd appreciate hearing your thoughts about it, it's already being pushed here by the psychosomatic-brigade. Frontiers in Psychiatry: A 4-Day Mindfulness-Based Cognitive Behavioural Intervention Program for CFS/ME. An Open Study, With 1-year Follow-Up
  2. Kalliope

    David Tuller: "Trial By Error: The View From Norway"

    Was not sure which thread to put this in, but will try here. Interview from Norway with David Tuller about the PACE trial
  3. Kalliope

    Open Seminar about ME in Oslo, Norway Nov. 27th (with amongst other David Tuller)

    Two of the lectures from this seminar are now available on YouTube. They were from prof. Karl Johan Tronstad and prof. Benedicte Lie. The lectures are in Norwegian. The third lecture was from David Tuller and will be available soon. Prof. Tronstad works closely with Fluge/Mella and their team...
  4. Kalliope

    News from Scandinavia

    2 lectures from a seminar by The Norwegian ME Association Nov. 27th are now available on YouTube. Is ME/CFS caused by energy deficiency in the body's cells? - prof. Karl Johan Tronstad for the university in Bergen (scientist working closely with Fluge and Mella and their team) Genetic...
  5. Kalliope

    News from Scandinavia

    New big feature article about ME today. I wonder if this might become a series? In this article we get to learn Iselin's story. She's 26 years old and has been sick since 2014. When the first tests at the doctor were normal, she was sent home. She then went to a doctor with a private practice...
  6. Kalliope

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    Carol Monaghan has just released a short film summarising what she's been up to in 2018. It starts off with the two major debates on ME treatment and research :)
  7. Kalliope

    News from Scandinavia

    A really good feature on ME from the commercial channel TV2 today. It contains an interview with ME patient Marianne who describes life with ME very well and how problematic it was for her being diagnosed so late and receiving wrong advice. Also an interview with ME researcher Olav Mella. I...
  8. Kalliope

    David Tuller: Trial By Error: Australian Draft Report Seeks Comment

    Australian Draft Report Seeks Comments In an eagerly awaited draft report, an Australian advisory committee on ME/CFS has called for the development of up-to-date domestic clinical guidelines and an increase in biomedical research into the pathophysiology of the illness. The draft report, which...
  9. Kalliope

    Thank-you to the friend of someone with chronic illness

    Too sick to organise (or perhaps even participate at) a party for big birthday coming up. Healthy friend offered a get-away just for the two of us instead :hug:
  10. Kalliope

    News from Scandinavia

    I'm sure it is custom in many countries to give commercials a break during holidays and to leave the space for non profit organisations to share their messages. At Dec. 26th on the commercial channel TV2, a short ad will come from the Norwegian ME Association about ME. This will probably reach...
  11. Kalliope

    #MEAction: NIH Update: Collins Will Meet With #MEAction Representatives!

    ah, I see what you mean. The twitter campaign was launched earlier, but don't know if it has its own thread here. Feel free to start one :-)
  12. Kalliope

    #MEAction: NIH Update: Collins Will Meet With #MEAction Representatives!

    It is a follow up letter after their meeting with NIH, so thought this thread was best suited.
  13. Kalliope

    Improving images used to depict ME/CFS

    Could it be possible to lobby directly towards Getty, Shutterstock etc? News articles about ME are increasing internationally, and chances are good that if they tag pictures "ME", "CFS" news agencies will use them and buy licenses for the pictures. Perhaps a request with a very short...
  14. Kalliope

    News from Scandinavia

    NHI - Norwegian Health Information - is a company providing an independent digital medical reference site for general practitioners. According to their website they are Scandinavias largest supplier of health information to health professionals. The information is written by doctors. For years...
  15. Kalliope

    News from Scandinavia

    The Swedish government ordered two public assessment on ME this year. The first was published two days ago and is discussed in this thread: https://www.s4me.info/threads/swedish-agency-for-health-technology-assessment-and-assessment-of-social-services-sbu-with-report-on-me.7277/ The second...
  16. Kalliope

    Study from Denmark linking infections to mental disorders

    CNN: Infections in kids tied to subsequent mental illness risk in new study (dec. 6th) Amy Proal seems excited:
  17. Kalliope

    Study from Denmark linking infections to mental disorders

    Might be of interest. It is getting a lot of attention in Denmark and Norway. The study is from Aarhus, a strong epicentre for psychosomatics and functional disorders, which makes me a bit wary whether there might be some politics involved here. Jama Psychiatry: A Nationwide study in Denmark of...
  18. Kalliope

    Concerns about Cochrane

    Peter Gøtzsche is crowdfunding to cover legal costs and to support a new Institute for Scientific Freedom GoFundME: Scientific freedom Peter R. Breggin MD and Ginger Breggin, International Center for the Study of Patient-Oriented Psychiatry write: “Peter Gøtzsche MD is a hero of science and...
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