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#MEAction: Study shows red blood cells less deformable in ME patients - possible biomarker Author: Ron Davis This paper documents that red blood cells are less deformable in ME/CFS patients compared to healthy controls. It potentially could be a biomarker, and we are proceeding to design new...

A few years ago Magnus Carlsen donated a signed chessboard for ME research, so who knows :)

6 000 signatures :balloons::balloons::balloons:

Rituximab Serum Concentrations and Anti- Rituximab Antibodies During B-Cell Depletion Therapy for Myalgic Encephalopathy/Chronic Fatigue Syndrome Rekeland, Fluge, Mella et al (only the abstract is available for now) Findings There were no significant differences in mean serum rituximab...

David Tuller and the chairman of the board of the Norwegian ME Association, Bjørn K. Getz Wold in meeting with MD Bjørn Guldvog, deputy director of the Norwegian Directorate of Health. Bjørn Guldvog is known among ME-patients for the following quote from 2011: - "I think that we have not cared...

- This review has had a catastrophic effect on people with ME who are still being forced to have an ineffective and potentially harmful treatment. Imagine if it was a drug or a vaccine with even a fraction of the evidence of harm, combined with such poor evidence of benefit? People assume that...

I SO wish I could be there and at the open lecture in Oslo, but was not able to make the journey. So was very grateful that it got live-streamed. Great talk!

Last week professor Karl Johan Tronstad (researcher working together with Fluge/Mella) and professor Kristian Sommerfelt (paediatric neurologist with over 20 years experience from ME, also cooperating with Fluge/Mella) came to Stavanger to give lectures on ME. The event was organised by the...

Film with professor and paediatrician Ola Didrik Saugstad from Oslo university hospital. I am quite brain fogged now, so there might be mistakes/inaccuracies, but here is a quick translation of what's being said: He says it seems health care personell often lacks in understanding ME. That the...

David Tuller is giving a talk soon in Drammen, Norway about the PACE-trial. It'll be live-streamed here at 18.00 PM (GMT+1)

Video with member of Parliament Lise Christoffersen (Labour Party). She praises the Norwegian ME Association for their work and acknowledges that there is too little knowledge about ME in the health care system. - There is little treatment, there is little research. This leads to ME patients...

A poster in English made for this campaign week

Video with MD and doctoral candidate Katarina Lien. She says the attitudes towards ME are changing, but there is still a long way to go. She believes there is a great need for patients for a place to turn to and receive some kind of follow up. Many patients have told her they feel left to...

Video with prof. Kristian Sommerfelt, paediatric neurologist at Haukeland university hospital. He has over 20 years experience with ME and is a very popular lecturer on the disease. In this video he talks about school and pupils with ME. He says we need increased knowledge about ME in general...

The Minister of Health and Care Services Bent Høie has written a response to this open letter Bent Høie: Forskning på ME er viktig for meg og regjeringen google translation: ME research is important for me and for the government I know it's hard to be ill with ME. People with ME experience...

The campaign is officially launched with this greeting from the chairman of the board of the Norwegian ME Association, Bjørn K. Getz Wold. He talks about the situation for ME-patients, points to USA (IOM-report, research funding from NIH, OMF, no recommendation of CBT/GET) and suggests the...