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#MEAction: Fall advocacy round-up - a season of protest and petition An extensive summary of this autumn's advocacy work around the world. Quite impressive list! :) Includes petitions, introduction of new staff members, news from different parts of the world, protests, and updates on among...

Forum member @JaimeS and her assistant Julia has written an extensive news roundup for September and October. It contains among other news from research, conferences and talks, medical news, science advocacy news, books & media and even Science4ME's 1. anniversary. Well done! #MEAction: Sept...

The chairman of The Norwegian ME Association has written a letter-to-the-editor to a newspaper about the situation for ME patients in Norway where he urges prime minister Erna Solberg to do more for the patients. He gives some historical background and update about recent developments in...

There is now a petition in support of Peter Gøtzsche: Letter to Danish Minister of Health against dismissal of Peter Gotzsche Initiators are: David Hammerstein former member of the Cochrane Governing Board and former Member of the European Parliament Tom Jefferson MD MRCGP FFPHM, Senior...

On this #OMFScienceWednesday we are happy to introduce a wonderful addition to our team, Michael Sikroa. Michael presented at the recent Community Symposium on the Molecular Basis of ME/CFS at Stanford University Full text at OMFs website

The UK ME/CFS Biobank: a disease-specific biobank for advancing clinical research into myalgic encephalomyelitis/ chronic fatigue syndrome This narrative paper describes how people with ME/CFS, together with a multidisciplinary team of researchers, have established the UK ME/CFS Biobank...

Huh, this might be an inaccurate statement from me .. I can't find a quote or source relating to the survey which clearly states that ME is the main cause of school absence in Norway due to long term illness. The survey says 270 pupils with ME are absent from school for over three months...

OMF: A Message from Ron Davis OMF announces that two new Stanford engineering researchers have been added to their team who will expand their red blood cell deformability projects. You can read a further introduction of the two new team members, Eric Shaqfed, PhD and Juan Santiago, PhD by...

The Norwegian ME Association has today had a meeting with state secretary Anne Grethe Erlandsen from the Ministry of Health and Care Services. This is what they say in their Facebook post: The Norwegian ME Association has today visited state secretary Anne Grethe Erlandsen from the Ministry of...

How to avoid ethical review I have written many posts about BMJ Open’s 2011 school absence study, which reported that school absence records could be useful in identifying children with chronic fatigue syndrome. However, for reasons not yet adequately explained, the investigators exempted the...

Aaron E. Carroll: Peer Review: The Worst Way to Judge Research, Except for All the Others One way to detect problems with research earlier would be to let researchers post manuscripts online before submission, for public judgment before formal peer review. This is already common in some...

This is from September, but just discovered it. The Danish doctor Stig Gerdes who stood up for severe ME patient Karina Hansen who had been sectioned by Per Fink, has now reported the director of the Danish Health Authority for neglecting the health of young women. The complaints are sent to...

Not sure what this is. Couldn't find the article on Sci-Hub, but thought it was interesting with a CFS-study from Finland. One of the authors is Olli Polo, who has been involved with ME for a while. Dampness and mold hypersensitivity syndrome and vaccination as riske factors for chronic fatigue...

Ten organisations ask congress to create legislation for ME/CFS On Friday, November 2nd, #MEAction, the Solve ME/CFS Initiative, and eight other ME/CFS organizations sent a letter to our champions in the House of Representatives – Representatives Eshoo (CA18), Lofgren (CA19), McGovern (MA02)...

Josefin Lennen Merckx Medicinreporter SVT Nyheter Rapport & Aktuellt phone +46708847056 connection 47308 josefin.lennen-merckx@svt.se

This was posted also in the News From Scandinavia thread, but I think it's a good idea to have single thread for these news. So I'll share my reply from the Scandinavia thread here as well: Oh, this is VERY exciting. The Paolo Macchiarini-scandal surfaced only thanks to a documentary sent on...

Oh, this is VERY exciting. The Paolo Macchiarini-scandal surfaced only thanks to a documentary sent on national television in Sweden. Those who had alerted of the scandal before the documentary were very badly treated. Macchiarini published in the Lancet and was protected by the establishment...