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Impressive list of signatories! ETA: x-posted with @NelliePledge

Borreliosis/Chronic Lyme. It's not called "the great imitator" for nothing. Partly due I suspect also to the fact that vector-borne illnesses often come with multiple co-pathogens each with their own symptom profile. Western medical science is strangely myopic when it comes to chronic...

A thousand likes to you as well, @MErmaid. That's a great campaign: make ME cool again! and fwiw my thoughts were in response to @wastwater's doctor's ideas about it being ok if there's enough signalling going on. (I so often forget to put the reply quote in, sorry :/ ) I feel that there has...

It seems there is more going awry in the brain than just pituitary/hypothalamus. Hyperintensities, atrophy, inflammation such as with the microglia, this newer lactate buildup thing....on and on. (I may be different than other PwME, bc I have terribly high levels of lead.) Still, I think the...

After 30+ years of not trying very hard.

Eugenics as a social philosophy is real. There is simply an expansion of the means of accomplishing it.

OTOH I'm so cynical, it occurs to me this is could be the advance guard of PR for the vaccine they've been working on.

FINALLY this epidemic is acknowledged in a mainstream paper. Another disease riddled with denialists, propaganda and patient abuse. Is this the year chronics get some respect?!?

Why has most research, besides Hyde, been on everything BUT the brain. We have brain damage and nobody cares. I mean, pretty much every ME patient has HPA axis problems. H and P are in the brain. Yet HPA Axis is becoming shorthand for functional which has become shorthand for "psychosomatic"...

Yes, @zzz, I also had hyperintensities, atrophy "not expected for age of patient", and inflammation, with the cerebellum pressing on the brain stem. It's frustrating and ironic that it's the exhausted brain damaged patient that then has to chase analysis/treatment after such findings. I found...

I looked further and found that ES can also cause leakage of the csf through the nose. I have definitely had regular epsiodes of clear fluid leaking from the nose, though no way to know if it was csf. http://care.american-rhinologic.org/csf_leaks of course headaches, tinnitus and blurry...

It's the same tactic in the US. It's basically an endurance test. Sick and disgusting.

Yes! My brain MRI showed a flattened, fat pituitary, and while my brain specialist didn't mention Empty Sella, she did say that the finding must be significant, bc she had never seen a radiologist make note of it on a report. Thank you for bringing this to my attention. ETA: how is it benign...

I'd like to see one of these assclowns try CBTing themselves out of a bout of sudden explosive diarrhea while driving alone down a secluded rural highway.

https://www.madinamerica.com/2018/01/failed-tb-vaccine-exposes-concerns-regarding-research-ethics/ Also goes a bit into the systemic cover-up by Oxford, raising (again!) the issue of how much of scientific research is led (perverted) by funding and profit.

https://www.madinamerica.com/2018/01/the-scientism-of-psychiatry/

A thousand outraged upvotes to both of you. The problem is deeply systemic; how ever did we get here?!?!

I'm beginning to genuinely wish some undetectable undiscovered tropical parasite on these people.

How does any so-called "medical" system advocate the removal of a person or family's innate agency? This is a fundamental right that is being eroded in so very many ways in our current culture. This equates to traumatic abuse for everyone involved. This idea of "we know better" is a pernicious...

It is unspeakably insane the way the so-called "medically unexplained symptoms" construct blames the sufferer for the failings of current medical sciences. How is this even a Thing? How are there enough people to give it traction? You'd think sensible people would shy away from furthering this...