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RME: Konferens 2024 https://rme.nu/aktivitet/konferens-2024/ Date: 9 October 2024 Registration deadline: 5 October 2024

Socialstyrelsen måste ändra sina felaktiga riktlinjer för ME-vården https://rme.nu/socialstyrelsen-maste-andra-sina-felaktiga-riktlinjer-for-me-varden/

EMEA published a news article about this survey in Finnish, a while back. Euroopan ME allianssin paneurooppalaisen ME potilaiden kyselyn tulokset https://europeanmealliance.org/emea-pan-european-survey-fin.shtml

IMY's investigation regarding Apotea is still ongoing, no decision yet: Apotea, gällande Meta-pixel https://www.imy.se/tillsyner/apotea-facebook/

The latest episode of Karolinska Institutet's podcast Medicinvetarna is about long covid, PEM and GET, POTS and dysautonomia, pacing, the new guidelines for management/treatment, vision related symptoms, rehab, mentions that anxiety in post covid can be due to physical reasons, etc. :thumbsup...

The Swedish Covid Association published a summary of this study in Swedish, on their website in March 2024 :thumbsup: Rubbningar i skelettmuskulatur förvärras i samband med post exertional malaise (PEM) https://covidforeningen.se/rubbningar-i-skelettmuskulatur-forvarras-i-samband-med-pem/

MEdagboken on Instagram wrote a really important piece in August, and I think it's definitely worth repeating again in this context.

SvD's Facebook post about the opinion piece, for those who are interested in reading the comments.

Opinion piece in SvD today, signed by Jonas Bergquist, Björn Brageé, Olli Polo, Jonas Axelsson and others. ”Socialstyrelsen försämrar ME-vården” https://www.svd.se/a/nyL4Jd/debattorer-socialstyrelsen-forsamrar-me-varden

I'd say there's no need to worry about where on the forum to post it. Mods are super helpful and will simply move your thread if they think there's a better place for it somewhere else than where you originally put it :)

Thank you so much for sharing your thoughts on this, much appreciated :) I too am getting the impression that he's basically talking about (fear-based) avoidance, but at the same time I was thinking maybe I'm reading too much into it...

(Not ME specific.) The Swedish Authority for Privacy Protection (Integritetsskyddsmyndigheten, IMY) issues administrative fines against two online pharmacies, for using the so called Meta-pixel on their website and transferring sensitive personal data to Meta. Apoteket AB, gällande Meta-pixel...

Covidföreningen: Nytt kunskapsstöd kan leda till allvarliga patientskador https://lakartidningen.se/aktuellt/nyheter/2024/08/covidforeningen-nytt-kunskapsstod-kan-leda-till-allvarliga-patientskador/

A news item on Swedish radio yesterday: Kritiken ökar mot Socialstyrelsens rapport om postcovid https://sverigesradio.se/artikel/kritiken-okar-mot-socialstyrelsens-rapport-om-postcovid (It really annoys me that Lindén keeps talking about something different than what the criticism is actually...

A news item on Swedish radio this morning (2 minutes): Kritiken: Nya riktlinjer för postcovid kan leda till patientskador https://sverigesradio.se/artikel/covid-forening-kritiserar-socialstyrelsens-riktlinjer-for-behandling Dr Lisa Norén says there are two problems: there is not enough clarity...

It's a bad auto-translation. Literally "be followed by", I think it was probably intended to be in the sense having check-ins and follow-ups etc over time? (Sorry, bad PEM, can't find the right words at the moment.)

A summary of this article in Swedish is available at the Swedish Covid Association's website: En medicinhistorisk exposé – framväxten av ME/CFS respektive FND som diagnos https://covidforeningen.se/en-medicinhistorisk-expose-framvaxt-mecfs-respektive-fnd/

Läkaren Anna drabbad av postcovid: ”Jag har fått strida för hjälpen jag fått” https://www.dn.se/sverige/lakaren-anna-drabbades-av-postcovid-jag-har-fatt-strida-for-hjalpen-jag-fatt/

"031 - Air Quality Can Affect Chronic Fatigue and Pain Here are some new results from our lab showing poor air quality may increase ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) fatigue and pain. This report is being prepared by graduate student Chloe Jones and is being submitted...