mango
Senior Member (Voting Rights)
Opinion piece in Läkartidningen yesterday (before the new guidelines were published). Signed by clinicians and researchers: Lisa Norén, Artur Fedorowski, Marcus Ståhlberg, Judith Bruchfeld and others. ME is not mentioned specifically, other than "other post infectuous conditions".
Postcovidmottagningar behövs både för patienter och framtida beredskap
https://lakartidningen.se/opinion/d...vs-bade-for-patienter-och-framtida-beredskap/

Postcovidmottagningar behövs både för patienter och framtida beredskap
https://lakartidningen.se/opinion/d...vs-bade-for-patienter-och-framtida-beredskap/
Auto-translate said:Post-covid clinics needed for both patients and future preparedness
‘Don't miss the unique opportunity that the pandemic brings: to accelerate learning and improve care in post-infectious conditions.’
In the current state of knowledge, best care means identifying the individual patient's symptom cluster through appropriate diagnostics to enable symptomatic treatment and personalised rehabilitation. This approach should be the starting point for the work of health services. Where up-to-date knowledge on diagnostics is not implemented, patients miss out on potential symptom relief. It is simple maths. Specialised care for post-covid and other post-infectious conditions is needed as niche expertise for consultation - just as for other complex and chronic diseases.
The importance of continuous knowledge development regarding postcovid is emphasised by the Swedish Agency for Health and Care Services Analysis [6]. Referring the most severely ill to primary care without the conditions to continuously follow knowledge development entails patient safety risks. The risk of unequal care increases.
Patients with severe post-covid need multidisciplinary specialised care. In one study, health-related quality of life in post-covid was reported to be similar to that of people with advanced lung cancer. The effect of post-covid on patients' daily activities was greater than that of stroke and comparable to that of Parkinson's disease [7]. Unlike chronic conditions with comparable impact on quality of life and activities of daily living, most regions lack a specialised level of care for the most severely ill in post-covid. Would this have been accepted for the other diagnoses above?
Gathering the most severely ill patients in multidisciplinary specialist centres, as recommended by the WHO [8], creates the conditions for building experience-based knowledge on a larger patient base, for research and for implementing the latest knowledge from research - in short, for providing good, accessible and patient-safe care. [...]