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So long as they're all properly qualified we could have a circle of them all investigating/harassing one another's investigations/harassments.

The fact that they appointed someone like Chris Burton, even after applying an "unusual level scrutiny", shows how broken the system is, and how desperately we need a more fundamental change to the way NICE works. "We expect them all to consider the evidence objectively and to consider...

Thanks a lot Suzy.

We need to accept what is true and then use that information to decide how to be most effective. It's easy to talk about defeating their innate advantages, but much harder to actually achieve. I'm not talking about surrendering to misinformation, but it's worth remembering how lots of attempts...

I don't think we can! Personally, I think that questioning death threats etc is a bad idea in almost any situation. Even in cases like Crawley's claim that the Sunday Times cover was an e-mail sent to her threatening to cut her balls off, where we have the graphic designer who created the cover...

In the context of the UK Establishment that's not deeply reassuring. If the system is so stacked against achieving much needed change then they should have been open about this from the start, so that we could have started to push for a reform to their systems before any appointments were made...

Kind of... I'm not sure it's fair to say he has an 'aversion to vaccines' generally, but to me he seems to have gone too far in some of his criticism of the HPV vaccine. Also, while I see the pharma industry as pretty corrupt, I also think of pharma research as generally being of better quality...

I don't know. Just because Cochrane are rubbish and he's criticising Cochrane doesn't mean he's good. I think he raises some important concerns about the way Cochrane works, but he also seems to have his own problematic blind spots and biases.

Yes. And when a stigmatised group is trying to challenge powerful people who are misusing their power it's helpful to be very careful and thoughtful about what we do and say - although I acknowledge that this is an additional burden on patients who already have more than enough to deal with...

Unfortunately, the situation and prejudices surrounding ME/CFS means that the average sick patient, angry about the way they are being treated, is given much less leeway in how they can comment on those who have power over them than general members of the public are in how they comment on...

While it would be ridiculous to try to tie that tweet to death threats, at the same time I don't think that tweeting something like that is a good idea. (And I say that having posted a few things that were probably not a good idea myself. I've had a comment of mine where I was complaining about...

Are they now trying to present DWP driven rehabilitation as something that is distinct from medical 'treatment' that require informed and freely given consent?

Where would we be if we forgot the Art of War!

What we've seen makes this look very bad, but also, we haven't seen the final article yet. Generally I think advocacy is most successful when there's a real commitment to being cautious and making sure we have the facts right before doing anything. I think the best thing to do right now is to...

Just clicked on Richard Bentall's profile to see what he was saying, other than complaining about CFS researcher being so rudely treated, and it was him describing an MP an "amoral sociopath". Then a few accusations of lying, eg: Any double standards there?

Another thing that pisses me off is how UK journalists can hugely over-hype the importance of whoever is sending stupid and offensive messages, acting as if these are the people who have helped draw attention to the problems with research like Wessely's, White's, Larun's, etc, then other...

This doesn't sound good. I may have got the impression that there may have been a change since Establishment people realised Cochrane were considering withdrawal of the Larun review, and I wonder if that led to a sense that they really needed to crush this to avoid embarrassment. This led to...

I've got to admit to being sceptical about any part of the UK medical research Establishment, but we'll have to wait and see.

I'm just going to bed, but stumbled upon this 2006 paper from Wearden and Chew-Graham that could be relevent to this thread: Managing chronic fatigue syndrome in UK primary care: challenges and opportunities https://www.ncbi.nlm.nih.gov/pubmed/17175657 scihub...

Sorry - English only for me. Anyone else had a look?