Search results

Dunno about online version but assume Dr Weir will have a copy of this as he was on that group may be worth contacting him.

A lot of people don’t think about this stuff

Old Trots Network rather than Old Boys Network

Ok I have sent a message for him with a link and I will report back on the response.

Oh great not only do we have to regiment all our activity and our sleeping habits now we’re only allowed to have a joke when the superior beings consider it appropriate :wtf::wtf::wtf::wtf:

Ok thanks @Andy i wasn’t sure if he’d already commented but as his area involves brain imaging it seemed to me like he might have something useful to say

does he have any thoughts/opinions he wants to share about CCI being linked to ME?

See it’s got a prominent link to the behavioural BPS based booklet AFME call introduction to pacing

Only on my phone so I can’t easily search there’s definitely a thread about this. It had some good content from Dr Baraniuk especially in the intro but the detail definitely still had CBT/GET.

Interesting. This seems to be a less severe form of dementia that mainly affects memory in older people in their 80s Which is what most of the public think dementia is as they might have had a granny who lost their memory in their last couple of years. That’s vastly different in impact to the...

Thanks for highlighting this @ladycatlover and it’s probably even worse for women.

@Natalie might be worth trying contacting Russell who does the ME Association Social Media to see if they will at least share the web page. I will do that if you like?

The low intensity 1-1 IAPT CBT i experienced was 30 minutes every 2 weeks. Minimal interaction with the “therapist” The time includes filling in the questionnaire and handing out the next worksheet and making sure you’ve understood it. Barely even allowed to spend time on how you got on with...

I might be completely off at a tangent here but when you said shooting pain and it is in leg and hand I wondered if it might be something to do with referred pain from nerves in neck or back. Like sciatica in legs you can have similar issues in arms. I had problems in my hand/arm at one...

I think this is excellent @Michiel Tack

The complex patient cloak of invisibility

Green tea has caffeine which is a no no for me I feel worse overall after an initial few hours boost because it aggravates my insomnia. But might explain if people feel perked up by this supplement.

Haven’t been able to read all your comments @rvallee but I agree this is in a different league to Auntie Trudie’s effort. Good to see an approach that actually makes sense.

Done and shared to local Facebook group

Flashing warning lights right there “significantly improved”