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  1. Sly Saint

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    It appears to be a Harley street breast clinic! contact email address for them is Email: mail@dbghosh.com might provide a clue as to who is behind the website(?)
  2. Sly Saint

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    I had forgotten that before their last statement on CBT,GET and the PACE trial last year, AfME made a previous statement in May 2017 Our Board of Trustees on CBT, GET and PACE May 16, 2017 https://www.actionforme.org.uk/news/board-of-trustees-on-cbt-get-and-pace/ so that's over two years ago.
  3. Sly Saint

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    thing is, years ago when I first came across it, it was the site that you were taken to for some of the links that were supposed to be to AfME. If you do a basic search on Google for 'Action for ME' it comes up second on the list so it's possible that some of those links are still live. Am...
  4. Sly Saint

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    this website https://web.archive.org/web/20190914091905/http://www.afme.org.uk/ we discussed it at the other place and some people thought it might have been a student project or similar. They are not a registered charity as far as I can find out. There is no information as to who they are...
  5. Sly Saint

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    Expansion Into Long Term Conditions By IAPT Is Quackery 29th October 2019 http://www.cbtwatch.com/expansion-into-long-term-conditions-by-iapt-is-quackery/#comments
  6. Sly Saint

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    yes, good work @Trish But it should not be up to individuals to point out glaringly obvious misinformation to the largest UK ME charity. that has always been their argument for putting out information on things like LP, Gupta etc as well as CBT and GET in the past. One of the problems with...
  7. Sly Saint

    The Hans Eysenck affair: Time to correct the scientific record (2019) David F Marks

    Was Eysenck right after all? A reassessment of the effects of psychotherapy for adult depression 2018...
  8. Sly Saint

    David Tuller: Trial By Error: How to Avoid Ethical Review

    followed this up and received a very brief reply
  9. Sly Saint

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    have been taking another look at the Wakefield MMR debacle and found this statement by the Lancet: https://www.thelancet.com/pb-assets/Lancet/extras/statement20Feb2004web.pdf all this conveniently seems to have been forgotten in recent coverage of anti-vaxxers so many similarities; will...
  10. Sly Saint

    United Kingdom: National Health Service (NHS) news

    NHS chief Simon Stevens blasts homeopathy as 'dangerous' and blames the industry for fuelling antivaxx myths https://www.dailymail.co.uk/news/article-7619805/NHS-chief-blasts-homeopathy-dangerous-blames-industry-fuelling-antivaxx-myths.html I can think of other treatments that fit that...
  11. Sly Saint

    EU Petition 2019 - opportunity to lobby for funding for ME research

    not sure how this fits in: http://www.europarl.europa.eu/doceo/document/E-9-2019-002599-ASW_EN.pdf
  12. Sly Saint

    Action for M.E. 2019 AGM and conference 15th October 2019

    I enjoyed @dave30th bit so much I did a transcript
  13. Sly Saint

    A Life Hidden - Blog posts by Naomi Whittingham

    thank-you so much @Naomi10 for what has clearly been a huge undertaking. I hope that your words will be read by many and taken on board by those in positions to make a difference.
  14. Sly Saint

    Action for M.E. 2019 AGM and conference 15th October 2019

    videos for agm now on youtube [eta DT around 48]
  15. Sly Saint

    Europe: European ME Alliance (EMEA) (also EMECC and EMERG)

    http://www.investinme.org/IIMER-Newslet-191001EMERGEMECC.shtml can't find any dates.
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