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  1. Sly Saint

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    there is a feedback or concerns page https://www.hra.nhs.uk/about-us/governance/feedback-raising-concerns/ eta: not sure if it is useable for a report done by the HRA tho
  2. Sly Saint

    How psychiatric referrals influence stigmatization in patients with myalgic encephalomyelitis and chronic fatigue syndrome: Jason et al 2019

    How psychiatric referrals influence stigmatization in patients with myalgic encephalomyelitis and chronic fatigue syndrome: An examination of American and British models Julia Terman, Joseph Cotler, Leonard A. Jason Article: Community Psychology in Global Perspective...
  3. Sly Saint

    Perrin Technique

    now advertising further 'event' for May 2020 https://www.eventbrite.co.uk/e/chronic-fatigue-syndromeme-fibromyalgia-16-17-may-2020-tickets-73795890495 how is this allowed to go on and on?
  4. Sly Saint

    ME Association announces three new research grants, Oct 2019

    article about this Cause of 'world's cruelest illness' could be laid bare by new research https://www.birminghammail.co.uk/news/health/cause-worlds-cruelest-illness-could-17130013
  5. Sly Saint

    Article: Canada - After long-awaited recognition, research begins in earnest around chronic fatigue | CBC News Oct 2019

    full article here https://www.cbc.ca/news/health/chronic-fatigue-recognition-research-1.5330712
  6. Sly Saint

    Cognitive behavioural therapy for irritable bowel syndrome: 24-month follow-up of participants in the ACTIB randomised trial, 2019, Everitt et al

    Articles| Volume 4, ISSUE 11, P863-872, November 01, 2019 Cognitive behavioural therapy for irritable bowel syndrome: 24-month follow-up of participants in the ACTIB randomised trial https://www.thelancet.com/journals/langas/article/PIIS2468-1253(19)30243-2/fulltext
  7. Sly Saint

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    Persistent physical symptoms reduction intervention: a system change and evaluation in secondary care (PRINCE secondary) – a CBT-based transdiagnostic approach: study protocol for a randomised controlled trial published 22Oct 2019 BMC Psychiatry volume 19, Article number: 307 (2019)...
  8. Sly Saint

    Esther Crawley

    Applied Research Collaboration - West (NIHR) staff Professor Esther Crawley Theme Lead Healthier Childhoods https://arc-w.nihr.ac.uk/about-arc-west/staff/ https://arc-w.nihr.ac.uk/research-and-implementation/#healthier-childhoods
  9. Sly Saint

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    I contacted the HRA about the issue in 2017 https://www.s4me.info/threads/david-tuller-trial-by-error-how-to-avoid-ethical-review.6653/#post-121341
  10. Sly Saint

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

  11. Sly Saint

    The PACE trial video series by A Broken Battery

    @Adam pwme I found this one from the day before ie 31st Oct 2016 but also cant view it.
  12. Sly Saint

    What Role for Autoimmunity, Neuroinflammation, and Small Fiber Neuropathy in Fibromyalgia, CFS [...] ? (2019) Ryabkova et al.

    Review Neuroimmunology: What Role for Autoimmunity, Neuroinflammation, and Small Fiber Neuropathy in Fibromyalgia, Chronic Fatigue Syndrome, and Adverse Events after Human Papillomavirus Vaccination? https://www.mdpi.com/1422-0067/20/20/5164/htm
    • Sly Saint
    • Thread
    • 2019 autoimmunity fibromyalgia hpv immunology me/cfs neuroinflammation paper ryabkova small fiber neuropathy
    • Replies: 1
    • Forum: ME/CFS research
  13. Sly Saint

    New ASU (Arizona State University) degree program to provide more nuanced understanding of disability

    full article here https://asunow.asu.edu/20191017-solutions-new-degree-program-provide-more-nuanced-understanding-disability
  14. Sly Saint

    Can Physical Activity Improve the Health of Wheelchair Users? - Bethesda, Maryland (NIH Visitor Information)USA Mar 2020

    March 30, 2020 - 8:30 AM - 5:45 PM March 31, 2020 - 8:30 AM - 1:30 PM Natcher Conference Center, NIH Campus, Bethesda, Maryland (NIH Visitor Information) ME not on list...
  15. Sly Saint

    Progression of intervention-focused research for Gulf War illness - Review Chester et al Oct 2019

    https://link.springer.com/article/10.1186%2Fs40779-019-0221-x
  16. Sly Saint

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    https://www.actionforme.org.uk/uploads/2016-2021-strategy-revised-aug-2018.pdf eta: sorry if this is tiresome
  17. Sly Saint

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    http://web.archive.org/web/20130917032932/http://www.actionforme.org.uk/Resources/Action%20for%20ME/Documents/get-informed/history-of-action-for-me.pdf
  18. Sly Saint

    The influence of the Cochrane review on GET

    might find something of interest on this thread https://www.s4me.info/threads/cochrane-review-and-the-pace-trial.2529/ from when Bob was still with us
  19. Sly Saint

    UK: PIP appeals - advice, recommendations?

    blog Appealing a PIP Decision • Mummying and M.E. https://mummyingandme.com/2019/10/13/appealing-a-pip-decision/
  20. Sly Saint

    Ofcom rule that Sky News' presentation of the Perrin Technique was "not duly accurate or duly impartial"

    another one claiming cure by perrin technique; tweet from MEA thread re Gary Burgess https://me-living.info/
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