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not quite sure if this is related; does anyone know what it is? DDT COA #000080: PROMIS® Fatigue Item Bank for ME/CFS/SEID Clinical Outcome Assessments (COA) Qualification Submissions Office of Drug Evaluation (ODE) II Division of Pulmonary, Allergy, and Rheumatology Products (DPARP)...

Having only skimmed through noting the overwhelming 'uncertain', 'low-certainty evidence' along the way I was gobsmacked when I read this para in the final discussion section re Agreements and disagreements with previous studies or reviews how the hell did they come up with that conclusion?

How will this affect any publications/applications for research etc that cite the previous version of the Cochrane review? eta: also can someone explain what's going on here so if this 'new' review is based on the search they did in 2014, how come they added 3 studies? and 'no ongoing studies'?

have only gone through the main page but I counted 24 (including the plain english version)

It will be posted on their Youtube channel (not there yet) https://www.youtube.com/channel/UCjdso7oUeJT90mL0PdHr0vQ

@Naomi10 thanks for 'taking up the challenge on this'. I was a bit worried about asking you but am very glad that you have done it.

to be honest I'd prefer to see someone like Trudie Chalder on there spouting about fear avoidance and deconditioning and the rest of their rubbish. Then people would really see what's behind the treatments on offer (ie GET/CBT) rather than the MEA apparently giving it credence. (I've done a...

Another article on this: Helping doctors diagnose an invisible illness full article here https://science.anu.edu.au/news-events/news/helping-doctors-diagnose-invisible-illness

This is good news @NelliePledge. Now if only they could get the link onto the NHS site! I have queried before the use (by the NHS) of a short video titled "Chronic Fatigue Syndrome - watch an expert describe the symptoms,diagnosis and treatments for..." with a fairly old video of Charles...

I wouldn't be surprised if 'they' pointed to the HRA report and said it had already been investigated and found to be all above board.

eta: blog link goes to english translation.

unfortunate that if anyone does a google search on 'cochrane review exercise for chronic fatigue syndrome', although the Vink paper comes up it only shows the first para of the introduction. so unless someone then reads the article it gives the impression that the review was sound. Something...

Interesting because he was the one saying it before (about being anti-psychiatry) eg: see the quotes here https://www.s4me.info/threads/simon-wessely-research-related-quotes.1304/#post-22183

Article in Abilitytoday Thousands of Studies Paint New Picture of Chronic Fatigue Syndrome – WCAI https://abilitytoday.com/thousands-of-studies-paint-new-picture-of-chronic-fatigue-syndrome-wcai/ links to full article here...

Service based comparison of group cognitive behavior therapy to waiting list control for chronic fatigue syndrome with regard to symptom reduction and positive psychological dimensions Heald, Adrian PhDa,*; Barber, Louise PhDb; Jones, Helen Lyon PhDb; Farman, Sanam MDc; Walther, Andreas PhDd...

didn't spot this the first time I looked at this site https://www.psychologytools.com/professional/problems/chronic-fatigue-syndrome/ ironic that the second reference is from ME-pedia.

https://www.uea.ac.uk/study/postgraduate/research-degrees/phds-and-studentships/uea-phds