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  1. Sly Saint

    Who is Simon Wessely?

    and they keep coming
  2. Sly Saint

    Coming soon; BBC Radio 4 investigation into IAPT Sep 2019

    retweeted by Michael Sharpe
  3. Sly Saint

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    which is what they should have done here; I'm guessing that one of the reasons they jumped on the Unrest bandwagon is because it is not UK focussed, and there is no direct criticism of what has been going on here over the last couple of decades. Such a missed opportunity by the UK charities. At...
  4. Sly Saint

    Conspiracy Files: Vaccine Wars (BBC iPlayer)

    don't suppose it questions how Wakefields paper was published to start off with, and it taking 12 years for the Lancet to retract it(?)
  5. Sly Saint

    Article in Bella magazine - 'Please Believe ME' 26 Sep 2019

    what I was pointing out in OP. however , am not sure that all of that quote you included is what Clare Ogden said. eta: although likely that source of the info re pacing is afme
  6. Sly Saint

    Article in Bella magazine - 'Please Believe ME' 26 Sep 2019

    write up on AfME website: https://www.actionforme.org.uk/news/bella-magazine-please-believe-me/ includes link to scan of article: https://www.actionforme.org.uk/uploads/images/2019/09/bella-please-believe-me.pdf still saying CBT is perfectly acceptable hmm Clare Ogden AfME double hmm
  7. Sly Saint

    News from Germany

  8. Sly Saint

    Scales which measure disease severity

    see also https://www.s4me.info/threads/when-you-were-diagnosed-were-you-told-what-severity-you-were-ie-mild-moderate-severe.7624/ https://www.s4me.info/threads/why-are-the-majority-of-pwme-rarely-mentioned.7732/
  9. Sly Saint

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    not meant as any kind of criticism ( I am a huge 'fan' of Vfts ). How are you 'promoting' these current videos and the project as a whole? Are the ME charities aware of them (other than MERUK and CureME)? I would think Nina Muirhead would be someone to contact (re training). I just worry that as...
  10. Sly Saint

    Coming soon; BBC Radio 4 investigation into IAPT Sep 2019

    No mention of IAPT, no 'interview' with Mike Scott. Mostly about lack of regulation of private therapists and patients who have suffered as a consequence. In fact he was very complementary about the NHS service (said he enjoyed CBT) in that at least you knew the therapists were 'properly...
  11. Sly Saint

    Graded activity is an important component in CBT to reduce severe fatigue: cancer survivors (Knoop et al., 2019)

    this post from Gary explains the difference (based on his experience) https://www.s4me.info/threads/symptom-survey-for-those-with-me-cfs.3720/page-4#post-66728
  12. Sly Saint

    ME/CFS services in the United Kingdom

    Another ad for physio job at Royal free; http://jobs.royalfree.nhs.uk/job/UK/London/Hampstead/Royal_Free_London_NHS_Foundation_Trust/Physiotherapy/Physiotherapy-v2006560 Job description: GET Specialist Physiotherapist / Exercise Physiologist, The Fatigue Service @PhysiosforME
  13. Sly Saint

    Coming soon; BBC Radio 4 investigation into IAPT Sep 2019

    On tonight. http://www.cbtwatch.com/bbc-investigates-the-therapy-business/ (see previous post for link)
  14. Sly Saint

    News from Germany

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