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will this new tool impact on the revision of the Cochrane exercise review?

Moderator note: This petition is discussed on this thread: https://www.s4me.info/threads/eu-petition-opportunity-to-lobby-for-funding-for-me-research.10363/page-2#post-200831 PETI-CM-640684_EN

Unfortunately but predictably https://www.bps.org.uk/news-and-policy/nice-myalgic-encephalomyelitis-or-encephalopathychronic-fatigue-syndrome-diagnosis

also in Scotland write up by AfME https://www.actionforme.org.uk/news/me-charities-come-together-for-better-care-in-scotland/

well at least it's not Call me Dave........ (for non UK, phrase used by former PM David Cameron when he was trying to show he was a 'man of the people', also the title of his unauthorised biography.)

we were also discussing it at the other place in 2017 https://forums.phoenixrising.me/threads/an-open-letter-to-psychological-medicine-again-by-d-tuller-et-al.50158/page-5 the original paper on the development of the Fatigue scale http://simonwessely.com/Downloads/Publications/CFS/32.pdf

this should feature somewhere as it is one feature that is possibly unique and one that cannot be 'explained away' by those supporting the 'deconditioning/fear avoidance' model.

another weird retweet from Michael Sharpe (does he ever read these things he keeps retweeting?) 5 Reasons It’s So Hard To Think Like A Scientist https://digest.bps.org.uk/2017/06/20/5-reasons-its-so-hard-to-think-like-a-scientist/

hopefully no singing this time

from Introduction interesting, a nice twist perhaps(?) But will anyone use it? Cochrane seem to be going in the opposite direction. full paper here https://bmjopen.bmj.com/content/bmjopen/9/2/e024622.full.pdf

I can't remember who said it but it was something along the lines of 'for a therapy to be accepted as valid it has to have a manual'. Take a common sense intuative approach to an illness/symptom and turn it into a marketable regime. so we had APT (invented to fail), now the 'Activity Pacing...

stop criteria? more circles?

I don't think they have the mild, moderate, severe classifications of ME/CFS in the US, it's only used in the UK. And what is called 'mild' in the UK is generally called 'moderate' in the US, which all just adds to the confusion. (I appreciate they are using moderate/severe in relation to...

Andrea Vedeler: The Norwegian Dilemma: Let ‘rehab’ make her even sicker for disability support, or have no income? August 30, 2019 is this who I think it is?

My main criticism would be that the 4 'core symptoms' are inadequate. In it's description of PEM it says 'typically delayed and prolonged exacerbation of symptoms' but apart from fatigue and sleep disturbance' it gives no indication of what the 'symptoms' are. Prolonged headaches, sore...

Webinar/Online Tuesday, September 10, 2019 at 12:30pm ET - 1:30pm ET Info Speaker(s) Robert Pendergrast, MD, FAAP Professor Department of Pediatrics Medical College of Georgia Augusta, Georgia Credits Offered This event offers 1.0 CE credit to attendees. Accredited by Georgia Nurses...

Download the MSQLI: A User’s Manual (PDF) https://www.nationalmssociety.org/For-Professionals/Researchers/Resources-for-Researchers/Clinical-Study-Measures/Modified-Fatigue-Impact-Scale-(MFIS) Fatigue Impact Scale (Fisk et al, 1994b)...

Write up looking at the CFQ in Occupational Medicine (2014) https://academic.oup.com/occmed/article/65/1/86/1433061

(Mods, do what you will with this.) This paper from 1998 is regularly cited in various papers as showing that the CFQ is a reliable measure for CFS research. But read beyond the abstract.......... https://www.sciencedirect.com/science/article/abs/pii/S0022399998000221 so they were...

Article https://www.sciencedirect.com/science/article/abs/pii/S1360859219301019 scihub : http://sci-hub.tw/https://doi.org/10.1016/j.jbmt.2019.03.006# eta: if you take away the psych analysis, these could be useful tests.