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  1. Sly Saint

    UK advocacy, campaigning what’s happening?

    article here https://www.meaction.net/2019/08/27/nice-drag-their-feet-on-stopping-the-harm-caused-by-get-and-cbt/
  2. Sly Saint

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    I hope that NICE are being made aware that the CFQ (used as key measurement in just about all bPS research except Crawleys research on children, where it was found to be 'not applicable', and is currently being 'reviewed' in Bristol) is not fit for purpose particularly in relation to ME...
  3. Sly Saint

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review 2012 https://www.jstor.org/stable/41411309?seq=1#page_scan_tab_contents eta: sort of covers most, if not all, bPS research
  4. Sly Saint

    Early warning signs of brain injury fatigue: It's like a switch is flipped

    Am posting this because it is interesting to see the number of different measures used to assess cognitive issues after strokes. AFAIK very few, if any are used in ME/CFS research or tested for as part of primary care. https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0221735
  5. Sly Saint

    Outpatient CBT for Motor Functional Neurological Disorder and Other Neuropsychiatric Conditions: A Retrospective Case Comparison (2019) O’Connell

    Nicola O’Connell, M.Sc., Ph.D.,Gillian Watson, B.N., P.G.Dip.CBT,Clare Grey, M.Sc., P.G.Dip.CBT, Rosa Pastena, D.Clin.Psych.,Kenneth McKeown, B.Sc. https://neuro.psychiatryonline.org/doi/abs/10.1176/appi.neuropsych.19030067?journalCode=jnp "This study provides evidence that CBT is feasible...
  6. Sly Saint

    IASP's Proposed New Definition of Pain Released for Comment

    @ScottTriGuy recently used a phrase that I think describes a bad migraine to perfection (certainly from my experience). "a 'kill me now' migraine" ; nothing to do with emotion, just pure desperation at wanting the pain to stop.
  7. Sly Saint

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    we are totally screwed then because just about the only RCTs/papers on this are done by bPS researchers. Is there any way to ensure that 'evidence' of this type is accompanied by any papers (eg by Mark Vink) that rebutt the findings/expose the flawed methodology? (The recent research on the...
  8. Sly Saint

    IASP's Proposed New Definition of Pain Released for Comment

    International Association for the Study of Pain seems to be an intended explicit move to bPS model of pain. https://www.iasp-pain.org/PublicationsNews/NewsDetail.aspx?ItemNumber=9218&navItemNumber=643 eta: the survey for submission of comments is here...
  9. Sly Saint

    Care Quality Commission - what are they doing re CBT/GET treatment for ME patients

    The Care Quality Commission (CGC) Is Being Duped by IAPT 21st August 2019 from CBTWatch
  10. Sly Saint

    Can Physical Activity and Exercise Alleviate Chronic Pain in Adults? A Cochrane Review Summary With Commentary, 2019, Puljak et al

    Moved from this thread: Survey of activity pacing across healthcare professionals informs a new activity pacing framework for chronic pain/fatigue, 2019, Antcliff et al _______________________ Can Physical Activity and Exercise Alleviate Chronic Pain in Adults? A Cochrane Review Summary With...
  11. Sly Saint

    Gay conversion therapy

    A longitudinal birth cohort study of early life conditions, psychosocial factors, and emerging adolescent sexual orientation 4 August 2019 Yin Xu Sam Norton Qazi Rahman https://onlinelibrary.wiley.com/doi/abs/10.1002/dev.21894
  12. Sly Saint

    The Black Box of Meta-Analysis

    (was going to post this on another thread I set up, but the title to that thread has been changed so am posting this separately) full title The Black Box of Meta-Analysis: Personality Change August 11, 2019...
  13. Sly Saint

    Ingestible Osmotic Pill for In Vivo Sampling of Gut Microbiomes 19 July 2019 Nejad, Oliveira et al

    paper here https://onlinelibrary.wiley.com/doi/full/10.1002/aisy.201900053
  14. Sly Saint

    Early warning signs of brain injury fatigue: It's like a switch is flipped

    All sounds very familiar. I wish there were another word to encompass these symptoms. I note they use the term 'pathological fatigue'.........
  15. Sly Saint

    Quantifying the Association Between Psychotherapy Content and Clinical Outcomes Using Deep Learning (2019) Ewbank et al.

    Psychosocial research: still not acknowledging failings (unless you look beyond the abstract) - (original title of thread) August 22, 2019 Quantifying the Association Between Psychotherapy Content and Clinical Outcomes Using Deep Learning Really? still only questionnaires, subjective...
  16. Sly Saint

    Bristol CFS/ME clinic researching patients' problems with Chalder Fatigue Questionnaire

    could be related to this https://www.s4me.info/threads/new-crawley-research-morph-cfs.1800/#post-31201
  17. Sly Saint

    The Triumph of Eminence-Based Medicine - Brian Hughes

    BMJ Editorial Redefining the ‘E’ in EBM https://ebm.bmj.com/content/23/2/46
  18. Sly Saint

    Testing Treatments: Better Research for Better Healthcare - book endorsed by NIHR

    Evidence to House of Commons Sci Tech Select Committee on Research Integrity December 5th, 2017 by Ben Goldacre https://www.badscience.net/2017/12/evidence-to-house-of-commons-sci-tech-select-committee-on-research-integrity/#more-3498
  19. Sly Saint

    TMJ Dysfunctions Systemic Implications and Postural Assessments: A Review of Recent Literature (2019) Samataro et al.

    Moderator note: Copied from this thread TMJ Dysfunctions Systemic Implications and Postural Assessments: A Review of Recent Literature Aug 2019 full paper here https://www.mdpi.com/2411-5142/4/3/58/htm
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