I hope that NICE are being made aware that the CFQ
(used as key measurement in just about all bPS research except Crawleys research on children, where it was found to be 'not applicable', and is currently being 'reviewed' in Bristol)
is not fit for purpose particularly in relation to ME...
Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review
2012
https://www.jstor.org/stable/41411309?seq=1#page_scan_tab_contents
eta: sort of covers most, if not all, bPS research
Am posting this because it is interesting to see the number of different measures used to assess cognitive issues after strokes. AFAIK very few, if any are used in ME/CFS research or tested for as part of primary care.
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0221735
@ScottTriGuy recently used a phrase that I think describes a bad migraine to perfection (certainly from my experience).
"a 'kill me now' migraine" ;
nothing to do with emotion, just pure desperation at wanting the pain to stop.
we are totally screwed then because just about the only RCTs/papers on this are done by bPS researchers.
Is there any way to ensure that 'evidence' of this type is accompanied by any papers (eg by Mark Vink) that rebutt the findings/expose the flawed methodology?
(The recent research on the...
International Association for the Study of Pain
seems to be an intended explicit move to bPS model of pain.
https://www.iasp-pain.org/PublicationsNews/NewsDetail.aspx?ItemNumber=9218&navItemNumber=643
eta:
the survey for submission of comments is here...
Moved from this thread:
Survey of activity pacing across healthcare professionals informs a new activity pacing framework for chronic pain/fatigue, 2019, Antcliff et al
_______________________
Can Physical Activity and Exercise Alleviate Chronic Pain in Adults?
A Cochrane Review Summary With...
A longitudinal birth cohort study of early life conditions, psychosocial factors, and emerging adolescent sexual orientation
4 August 2019
Yin Xu
Sam Norton
Qazi Rahman
https://onlinelibrary.wiley.com/doi/abs/10.1002/dev.21894
(was going to post this on another thread I set up, but the title to that thread has been changed so am posting this separately)
full title
The Black Box of Meta-Analysis: Personality Change
August 11, 2019...
Psychosocial research: still not acknowledging failings (unless you look beyond the abstract) - (original title of thread)
August 22, 2019
Quantifying the Association Between Psychotherapy Content and Clinical Outcomes Using Deep Learning
Really?
still only questionnaires, subjective...
Evidence to House of Commons Sci Tech Select Committee on Research Integrity
December 5th, 2017 by Ben Goldacre
https://www.badscience.net/2017/12/evidence-to-house-of-commons-sci-tech-select-committee-on-research-integrity/#more-3498
Moderator note: Copied from this thread
TMJ Dysfunctions Systemic Implications and Postural Assessments: A Review of Recent Literature
Aug 2019
full paper here
https://www.mdpi.com/2411-5142/4/3/58/htm
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