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  1. Sly Saint

    ME Association Monthly Survey, April 2019: Co-morbidities

    TMJ Dysfunctions Systemic Implications and Postural Assessments: A Review of Recent Literature Aug 2019 full paper here https://www.mdpi.com/2411-5142/4/3/58/htm ________________________ Moderator note: To discuss this paper, go to this new thread: TMJ Dysfunctions Systemic Implications and...
  2. Sly Saint

    David Tuller: Trial By Error: Cochrane's Report on Courtney's Complaint

    see also How to make sense of a Cochrane systematic review https://breathe.ersjournals.com/content/10/2/134
  3. Sly Saint

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Patient groups demand sanctions on those who fail to report clinical trial results 20 Aug 2019 second on the list is Cochrane. https://www.transparimed.org/single-post/2019/08/20/Patient-groups-demand-sanctions-on-those-who-fail-to-report-clinical-trial-results (hmm does that include...
  4. Sly Saint

    Ampligen for ME/CFS

    Hemispherx Biopharma, Inc. Changes Name to AIM ImmunoTech Inc. Reflecting Ampligen’s® Immuno Modulation Progress in Ongoing Oncology Clinical Trials and ME/CFS Aug 23...
  5. Sly Saint

    Stripy Lightbulb - E-learning on ME/CFS - Sally Callow

    Blog Admit It So That We Can Progress Aug 21st 2019 Sally Callow @PhysiosforME rest of blog here: https://www.stripylightbulb.com/2019/08/21/admit-it-so-that-we-can-progress/#more-544 anyone have any info on what is included in the training course?
  6. Sly Saint

    Care Quality Commission - what are they doing re CBT/GET treatment for ME patients

    The CQC would like your feedback please August 22, 2019 https://www.metrust.org.uk/2019/08/22/the-cqc-would-like-your-feedback-please/ (don't know a lot about the ME trust apart from CofM being a patron, and that they are a Christian group and include spiritual guidance as part of their...
  7. Sly Saint

    ME/CFS services in the United Kingdom

    Self Help Information for Patients https://www.cpft.nhs.uk/PDF/Miscellaneous/Patient%20Self%20Help%20Information%20Booklet%20May%202017.pdf
  8. Sly Saint

    ME/CFS services in the United Kingdom

    Chronic Fatigue Syndrome (CFS)/ Myalgic Encephalopathy (ME) Management Programme joke? http://www.srft.nhs.uk/EasysiteWeb/getresource.axd?AssetID=43129&type=full&servicetype=Inline
  9. Sly Saint

    Psychological predictors of fatigue, work and social adjustment, and psychological distress in rheumatology outpatients: A short report. 2019 Chalder

    Matcham, F., Ali, S., Irving, K., & Chalder, T. (2019). Psychological predictors of fatigue, work and social adjustment, and psychological distress in rheumatology outpatients: A short report. European Journal of Health Psychology, 26(1), 25-29. https://psycnet.apa.org/record/2019-31300-004
  10. Sly Saint

    Fatigue: The Silent Symptom of Parkinson’s Disease

    Fatigue in Parkinson's disease is associated with lower diastolic blood pressure August 22, 2019 https://medicalxpress.com/news/2019-08-fatigue-parkinson-disease-diastolic-blood.html
  11. Sly Saint

    "Body Reprogramming: Patient guide for recovery using the Hyland model"

    https://www.plymouthhospitals.nhs.uk/body-reprogramming
  12. Sly Saint

    The association of major life events with chronic fatigue, 2019, Schmaling & Patterson

    “acronyms of ignorance” https://www.s4me.info/threads/government-and-insurance-companies-establishing-the-bps-model.2319/page-3#post-123982
  13. Sly Saint

    The People’s Trial: your chance to be a scientist in a fun online trial - 6 Aug 2019

    This is not being done by Cochrane. "We are the Health Research Board-Trials Methodology Research Network (HRB-TMRN) based in NUI Galway" There is one person who worked for Cochrane on the team. Sarah Chapman "Sarah writes for, and edits, Cochrane UK’s blog" https://thepeoplestrial.ie/meet-the-team/
  14. Sly Saint

    Dr Byron Hyde - Canada

    https://www.nightingale.ca/our-founder https://www.nightingale.ca/ https://www.hfme.org/
  15. Sly Saint

    Characterising the gut microbiome in veterans with Gulf War Illness: a protocol for a longitudinal, prospective cohort study - 2019 Keating et al

    full paper here: https://bmjopen.bmj.com/content/9/8/e031114?rss=1
  16. Sly Saint

    Anger over Unum sponsorship of ‘Superhero’ triathlon event

    August 8, 2019 full article here: https://www.disabilitynewsservice.com/anger-over-unum-sponsorship-of-superhero-triathlon-event/ (see also thread https://www.s4me.info/threads/government-and-insurance-companies-establishing-the-bps-model.2319/ )
  17. Sly Saint

    Current Concepts in Diagnosis and Treatment of Functional Neurological Disorders, Espay et al, 2018

    Founding Members https://www.fndsociety.org/about-us/founding-members (Trudie Chalder and Mark Edwards are on the list) Resources: Functional Neurological Disorder: a patient's guide Self-help website for patients with functional neurological disorder (FND), functional neurological symptoms /...
  18. Sly Saint

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    all individual presentations available on Youtube: NIH 2019 Conference: Accelerating Research on Myalgic Encephalomyelitis & Chronic Fatigue Syndrome 12 videos Updated yesterday https://www.youtube.com/playlist?list=PL9KL7sas9xFnfRU_o8V7gQGaCTYVjW9mX
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