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Michael Sharpe trying to provoke responses to add to his 'abusive' file(?) (he retweeted [@cfs_research] link to the article over a week ago but there were only two replies) maybe leave it that way. Not really worth replying to.

pdf of full paper https://ueaeprints.uea.ac.uk/58235/1/1351_Shakespeare.pdf was telling a young man I know with RA (who was quoting Nietzsche at me yesterday) about the bps model (or the version being used by DWP etc) ........he had never heard of it but has been on the receiving end of the...

https://www.cochrane.org/news/appointment-new-editor-chief-cochrane-library

didn't know which of the PACE threads to post this on. just thought it was a neat concise point out of key probs with PACE

Ethics fly out of the window at Oxford University when big donors come calling article in guardian https://www.theguardian.com/commentisfree/2019/jun/22/ethics-fly-out-window-oxford-university-when-big-donors-come-calling

Until the clinics accept that CBT/GET can cause harm they will continue to attribute any deterioration/drop out to 'something else' eta: cross posted with ukxmrv

I would worry that they ended up recruiting from fatigue clinics. Personally, I would prefer research to concentrate on some kind of fairly reliable biomarker first to ensure participants in this kind of genetics study were patients with ME. Could they not just do the analysis on the all the...

something I didn't know, but also something the assessors appear to ignore.

Dr Enlander is considered an 'ME expert' in the US (he was Jen Breas doctor and is in Unrest). He has previously said on a number of occasions that he and his team (when he was at Mt Sinai, he now has a private clinic) 'proved' that exercise was bad for pwME but they never published anything on...

Not a recommendation youtube generated text this seems a bit irresponsible or am i missing something? (ie promoting a product before it has been officially tested) eta: see my later post for more info...

full debate here https://www.theyworkforyou.com/whall/?id=2019-06-25a.294.0&s=Chronic+Fatigue+Syndrome#g294.1

Fiona Godlee will be in NZ later this year " Getting Better with Evidence 10 December 2019, New Zealand Details 8:00 am, December 10, 2019 — 5:30 pm, December 10, 2019 Venue University of Auckland (Grafton Campus)"...

video here https://www.ouh.nhs.uk/chronic-fatigue/treatment/whats-involved.aspx some patients repeatedly call it chronic fatigue. One did use ME. eta: 'patient' at the end says "you've got nothing to lose. Don't be afraid of the word exercise" "I would say to anyone considering it, absolutely...

I watched this last night. In addition to BII there is also a 'new cancer' Breast Implant Associated Cancer. There are several news stories on the web about this today. eg UK regulator ready to re-examine safety of breast implants...

Registered Charity 1181205 I came across this charity that doesn't seem to have had a lot of activity for a while. advisors Dr Amy Proal @Amy Proal and Caroline Struthers @Caroline Struthers trustees: Emma Joy, Dr Claudia Gilberg, Geoff Jones, Adam Joy...

For people in US A lot of information https://howtogeton.wordpress.com/social-security-disability/

Myalgic Encephalomyelitis Chronic Fatigue at the National Institutes of Health https://www.centerwatch.com/clinical-trials/listings/183621/chronic-fatigue-syndrome-myalgic-encephalomyelitis-chronic-fatigue/?&radius=50