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  1. Sly Saint

    Blog: Is IAPT ‘too big to fail?’

    have looked at the site; no mention of MUS as far as I can see. twitterers; maybe someone could query it?
  2. Sly Saint

    Wesselys Mental Health review could also replace Mental Capacity Act

    Life-saving mental health care must not be ‘an awful experience’ for patients Sir Simon Wessely Article in Sunday Times (requires subscription) "For those with mental disorders, the Mental Health Act can take away your liberty and impose treatment that you don’t want." what about those...
  3. Sly Saint

    Unhealthy attachments: myalgic encephalomyelitis/chronic fatigue syndrome and the commitment to endure - chapter in book on queer commitment

    Professor Sally Munt http://www.sussex.ac.uk/profiles/41291 see also https://cbttherapist.com/dir/therapist-listings/sally-r-munt/
  4. Sly Saint

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    new band member? https://www.s4me.info/threads/babcp-band-bedlam-featuring-trudie-chalder-gig.3778/ eta: or Simon Cowell in search of new talent?
  5. Sly Saint

    Royal Free - PACE trial involvement, CBT and GET justification

    for four years? on their own website. Gabrielle Murphy, in her talk, was singing about the wonders of Google and how she could look something up on the internet if it was raised by a patient. They are clearly proud of their involvement in PACE; you'd think that someone from her department or...
  6. Sly Saint

    Royal Free - PACE trial involvement, CBT and GET justification

    that makes it even worse! the fact that this false info has been sitting there for all to see and no one has questioned its validity. It should be raised with the NICE committee. How can someone who OKs this complete distortion of the facts and adds fabricated info to boot be relied upon for...
  7. Sly Saint

    Royal Free - PACE trial involvement, CBT and GET justification

    On Royal Free website: CFS/ME research "This purpose of the PACE trial was to better understand the possible causes of chronic fatigue syndrome." Really? Since when? https://www.royalfree.nhs.uk/services/services-a-z/fatigue-service/cfs-me-research/ (see also Graded exercise...
  8. Sly Saint

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    I actually didn't say that they should have mentioned the PACE trial (in this article), I was referring/pointing to a previous article they did about the PACE trial and how that was also biased, and gave Michael Sharpe the last word. I haven't got the energy to keep going with this but this...
  9. Sly Saint

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    I followed this up and have finally had a reply missing the point again but hey ho.
  10. Sly Saint

    USA - NCHS/CDC Proposal for ICD-10-CM - adding SEID

    see https://www.s4me.info/threads/a-proposed-rule-by-the-veterans-affairs-department-on-02-05-2019-us-format-uk-format-05-02-2019.8056/#post-177725
  11. Sly Saint

    ABC: Love and Chronic Fatigue Syndrome

    have only listened to the first 12 minutes. Not as trivialised as the description might suggest. Also has people phoning in. https://www.abc.net.au/radio/programs/the-hook-up-podcast/chronic-fatigue-syndrome-and-love/11218260
  12. Sly Saint

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Like a lot of things, it would take a major disaster to force an enquiry for it all to come to light. This is unlikely to happen, particularly as there is no official means of reporting/registering of harms of any non-drug therapies.
  13. Sly Saint

    'Recovery' statistics

    from the CMO report in 2002 http://www.erythos.com/gibsonenquiry/docs/cmoreport.pdf
  14. Sly Saint

    A Proposed Rule by the Veterans Affairs Department on 02/05/2019 (US format - UK format 05/02/2019)

    https://www.federalregister.gov/documents/2019/06/18/2019-12682/schedule-for-rating-disabilities-infectious-diseases-immune-disorders-and-nutritional-deficiencies
  15. Sly Saint

    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    Have only skimmed it but noticed that they say kids in the 'more active' group had higher anxiety than in the 'low activity' group; could this be the 'tired but wired' aspect that a lot of us experience when we do too much? I can see how they might confuse this with 'anxiety'. Also don't these...
  16. Sly Saint

    USA: Disability Insurance for ME/CFS

    see also his video here https://www.s4me.info/threads/experiences-with-insurance-companies.4634/#post-161725
  17. Sly Saint

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    DWP gives private companies £630m for more disability benefit tests https://www.independent.co.uk/news/uk/politics/dwp-disability-benefits-test-government-contracts-pip-esa-a8949631.html
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