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Posts discussing IAFME, Forward ME and the roles and relationships of ME organisations have been moved to this thread.

No, this is not in the new guidelines, but is in the section 'what is ME and CFS' of the Sussex & Kent ME/CFS Society website.

Considering who the MEASussex is collaborating with, there are reasons to be concerned: https://measussex.org.uk/what-is-me-or-cfs/

Besides all the limitations such a debate inherently has, "the discredited PACE trial" was a blatancy for everyone. Who would have bet that with certainty a few years ago?

Sorry, because I didn't get everything, what was put to vote exactly?

At the beginning, some said it was a non partisan question, and all interventions are heading in the same way.

Wow, apart from the fact that this is pure speculation, this is hateful. In the real world like in all those service evaluations that barely show any improvment? This is very embarrassing. Such blatant anger against patients from "carers", disturbing really.

They even seem to admit it: This is insane. "We give you a diagnosis, whatever that means."

@dave30th's post on the debate: Trial By Error: Carol Monaghan Scores Another Parliamentary Debate Edit: dedicated thread there.

I think everybody agrees with the fact that obesity rates would decrease if people ate more healthily. That is obvious. But major lifestyle changes are not easy for many complex reasons (if it were, there would be no problem anymore). Saying to obese people "just change your lifestyle" is akin...

Posts relating to the Backbench debate (UK Parliament) Thursday 24th January 2019 granted to Carol Monaghan have been moved to a new thread.

The phenomenon of an older generation complaining about the following one goes back to Antiquity: http://www.bbc.com/capital/story/20171003-proof-that-people-have-always-complained-about-young-adults

Maybe if they eat too much potatoes?

Article in the Independent: Screen time no more harmful to teenage mental health than eating potatoes, study shows https://www.independent.co.uk/news/science/screen-time-mental-health-wellbeing-vegetables-potatoes-science-health-oxford-university-a8727691.html

Even though we're not in a position of power, I think the situation is no longer as dire as she describes. This was true two or three years ago, but less so now. Edit: crosspost with @JohnTheJack Not sure there is such a thing as an "ME community", just sick and disorganised patients that are...

https://www.nature.com/articles/s41562-018-0506-1 This twitter thread explains how data have been distorted to fit the preconceived views of the authors of the primary studies: A few tweets:

I am always bemused by how low AfME's standards are. Unbelievable. Great letter, @Trish