Sorry to answer that late (I was wiped out when I saw it and then forgot :bag:)
I don't know what to think about anything set up by the ASFC. It's always a mix of good and very bad things. I do not expect much...
As long as there is no biomarker, I don't see how we could be sure of anything. A case definition is just a temporary mean to try to diagnose and study people suffering from symptoms that may have the same etiology. There's a reason clinical diagnosis are not used after a biomarker is found...
https://www.sciencedirect.com/science/article/pii/S0889159118302423?via%3Dihub
And an article on the Karolinska Institute website:
https://ki.se/en/news/people-with-fibromyalgia-have-inflammation-of-the-brain
Turmoil erupts over expulsion of member from leading evidence-based medicine group
By Adam Marcus and Ivan Oransky
https://www.statnews.com/2018/09/16/expulsion-cochrane-peter-gotzsche-medicine/?utm_content=buffer8e317&utm_medium=social&utm_source=twitter&utm_campaign=twitter_organic
I don't know if this is relevant in any way to this discussion... Apparently there is a governance crisis in the nordic group:
https://nordic.cochrane.org/sites/nordic.cochrane.org/files/public/uploads/moral_crisis_in_cochrane.pdf
Where have you seen that anybody here wanted to defend GET and CBT? That is nearly laughable.
What people object to is your idea of a "name and shame" site. You'd better ask yourself why such an idea is abhorrent to many people instead of implying we're all too naive or are too dumb to really...
Posts beyond this one were merged from thread "Tired all the time / Book by Marie Thomas (2018)"
The first pages of the chapters can be read there.
This is the beguinning of the 3d chapter:
I'm wondering what "rehab courses run by @Action for M.E. " she's refering to.
Seems like MS still has friends in the UK at Oxford University:
An ode to Michael's tremendous work (wondering who wrote this, I nearly choked while reading...):
And the best (this was suposedly revised in 2018!):
Direct...
This is such a mess... Why was this paper published at all if the results can be turned down easily whenever it suits someone? Either the peer review was awfull, and they shouldn't have let that happen because the data are uninterpretable, or the authors are contradicting themselves each time...
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