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  1. Cheshire

    Press Release: France ASFC to clinically evaluate ME/CFS pathogenesis model by Bio-Modeling Systems

    Sorry to answer that late (I was wiped out when I saw it and then forgot :bag:) I don't know what to think about anything set up by the ASFC. It's always a mix of good and very bad things. I do not expect much...
  2. Cheshire

    Immunosignature Analysis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (2018) Fluge et al.

    https://link.springer.com/article/10.1007/s12035-018-1354-8 Edit: Text breaks are mine.
  3. Cheshire

    USA - NCHS/CDC Proposal for ICD-10-CM - adding SEID

    You're talking about treatment, the IOM is not, just symptoms management.
  4. Cheshire

    USA - NCHS/CDC Proposal for ICD-10-CM - adding SEID

    This is clearly a distortion of what was said in the IOM report, where it was clearly stated that CBT and GET are no treatment for SEID.
  5. Cheshire

    USA - NCHS/CDC Proposal for ICD-10-CM - adding SEID

    As long as there is no biomarker, I don't see how we could be sure of anything. A case definition is just a temporary mean to try to diagnose and study people suffering from symptoms that may have the same etiology. There's a reason clinical diagnosis are not used after a biomarker is found...
  6. Cheshire

    Graded exercise therapy for ME/CFS is not effective and unsafe. Re-analysis of a Cochrane review (2018) Health Psychology / Vink

    http://journals.sagepub.com/doi/full/10.1177/2055102918805187
  7. Cheshire

    Cumbersome Cochrane Report (About ME/CFS Cochrane review)

    In Dagens Medicine by Benedikte Monrad-Krohn Article Google translate
  8. Cheshire

    Brain glial activation in fibromyalgia – A multi-site positron emission tomography investigation (2018) Albrecht et al.

    https://www.sciencedirect.com/science/article/pii/S0889159118302423?via%3Dihub And an article on the Karolinska Institute website: https://ki.se/en/news/people-with-fibromyalgia-have-inflammation-of-the-brain
  9. Cheshire

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    Wow! Both @dave30th and @Brian Hughes ! Looks very promising.
  10. Cheshire

    Concerns about Cochrane

    Turmoil erupts over expulsion of member from leading evidence-based medicine group By Adam Marcus and Ivan Oransky https://www.statnews.com/2018/09/16/expulsion-cochrane-peter-gotzsche-medicine/?utm_content=buffer8e317&utm_medium=social&utm_source=twitter&utm_campaign=twitter_organic
  11. Cheshire

    Concerns about Cochrane

    I don't know if this is relevant in any way to this discussion... Apparently there is a governance crisis in the nordic group: https://nordic.cochrane.org/sites/nordic.cochrane.org/files/public/uploads/moral_crisis_in_cochrane.pdf
  12. Cheshire

    Epigram: Senior Bristol researcher resigns after admitting to research misconduct

    On the BBC now: Bristol lecturer resigns over fabricated research
  13. Cheshire

    Name and shame list of institutions and psychiatrists/psychologists/pediatricians coercing exercise therapy on unwilling ME/CFS patients

    Where have you seen that anybody here wanted to defend GET and CBT? That is nearly laughable. What people object to is your idea of a "name and shame" site. You'd better ask yourself why such an idea is abhorrent to many people instead of implying we're all too naive or are too dumb to really...
  14. Cheshire

    "Tired all the Time" (academic book) by Marie Thomas

    Posts beyond this one were merged from thread "Tired all the time / Book by Marie Thomas (2018)" The first pages of the chapters can be read there. This is the beguinning of the 3d chapter: I'm wondering what "rehab courses run by @Action for M.E. " she's refering to.
  15. Cheshire

    Treating chronic fatigue syndrome / Oxford Neuroscience

    Seems like MS still has friends in the UK at Oxford University: An ode to Michael's tremendous work (wondering who wrote this, I nearly choked while reading...): And the best (this was suposedly revised in 2018!): Direct...
  16. Cheshire

    Confirmatory factor analysis of a myalgic encephalomyelitis and chronic fatigue syndrome stigma scale (2018) Termann et al.

    Julia M Terman, Jessica M Awsumb, Joseph Cotler, Leonard A Jason http://journals.sagepub.com/doi/abs/10.1177/1359105318796906
  17. Cheshire

    BMJ: Pressure grows on Lancet to review “flawed” PACE trial

    This is such a mess... Why was this paper published at all if the results can be turned down easily whenever it suits someone? Either the peer review was awfull, and they shouldn't have let that happen because the data are uninterpretable, or the authors are contradicting themselves each time...
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