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So neither diagnosis nor actual symptoms matter. It is BPS all the way down.

And for the child to simply bias their self-reporting to avoid the adverse social consequences of 'failing to improve'. They are putting the children in a situation where they cannot give an answer that is both true and acceptable to the authority figures ruling over their lives (parents...

I think the donation pattern is becoming that some wait until the last day or three to see what the deficit is to decide how much to donate. There were a number of large donations ($1000 +) right at the end. Thank you to everybody who contributed, no matter how small. Ten dollars from somebody...

Exactly. One thing that ME/CFS, and now LC, have exposed about medicine – at least at the clinical level – is that it has a terrible cultural prohibition on saying 'we don't know'. They would rather give an utterly ludicrous false answer than no answer at all. Which is about as inviting of...

It could also be argued that those diagnosing are in fact projecting their catastrophising onto those being diagnosed. They are catastrophising about others psycho-behavioural responses.

The woo monster is on the loose.

:laugh:

Yeah, it is not like we have much choice but to keep knocking on the doors of government until it is done properly.

I remain very sceptical and concerned about this stuff.

I have always had serious doubts about the whole concept of personality disorder, and even more so about its use in the clinic.

People with Persistent Physical Symptoms experience physical symptoms that are not wholly explained by a medical disorder or disease. '...not currently explained by..." Which is a very different interpretation. They are still stuck in we-just-need-to-tweak-the-marketing delusion.

Their professional ethics oblige them to not 'treat' patients with an outdated and harmful recommendation. That is the minimum position they can take. I really don't have any sympathy or tolerance left for clinicians hiding behind these kind of excuses. Are they incapable of reading the damn...

THIS!!!

re: alcohol intolerance Talked about this before elsewhere on the forum, but probably worth repeating here. Different alcoholic drinks do very different levels of 'damage', to humans in general, not just ME/CFS patients. At one end is stuff like cider, which is well known to deliver ferocious...

These are going to be limited by the current lack of accurate and precise diagnostic criteria. We have to work with what we have at the moment, of course. But any approach used for now is going to have to factor that limitation in, until we have better criteria. I have sometimes wondered what...

Who is Garner to tell us the same thing? You are aware that Garner has never received a formal ME/CFS diagnosis? Yet he is endlessly lecturing those of us who did about what we are experiencing and how we should manage it, and viciously defaming us when we don't fall at his feet in gratitude...

When all else fails, just change the label. Rinse and repeat.

And this, I think, reveals their lack of good faith. The only significant 'revisions' they have made are to their marketing language, by very slightly toning down the strength of their claim (all diseases have something like all diseases/illnesses have a psychological component), and doubling...

The fact that the response as been done via Rapid Responses might be a decision from the journal, they might have denied the authors a more 'authoritative' prominence. Which in turn might suggest the journal is not interested in giving the debate any further prominence, at least in their...