Search results

I follow the arguments, but I think a problem is that the whole system works like this, doesn't it? Please put me right if I'm wrong but isn't this what the system is?

I don't think anything I do is exciting or lively enough to merit the word 'Boom'. More like dogged trudging with intermittent flailing. I'll come back to read the papers.

I like that this latest response to Groves takes the pressure up a notch further. Groves can sort this out, or she can take it to the HRA for them to sort out, or (implication) this evidence will be taken to the HRA for her (I hope). The HRA are on the table. Nice!

I don't think it matters who the researchers blame. They are the researchers, and are responsible for their research. (With regard to AfME I'm far more interested in what they do now and going forward)

Thank you Clare, for engaging with the forum and responding in this thread. Can I ask what Action for ME would consider to be sufficient reason to not list GET/CBT as treatments that might be 'helpful to some people' on their website? Is AfME waiting for retraction of PACE, a change to the...

Sorry @Gingergrrl - you're right to pull me up on my use of colloquialisms as they're not always understandable to others from different places. I guess I lapsed into them because I was tired and foggy and had started a post and was determined to finish it but it wasn't helpful to you ( and...

David's work addresses the politics around ME which have been/are a huge problem, and it seems to me too that the next year is an important one - well worth supporting. I will be donating again later in the month.

I do agree that research is critically picked apart on this forum but that in my opinion is a good thing. I think those who dismiss some research have reasonable reasons for doing so, which is fair enough, and views do differ. @Gingergrrl - My current reservation eg. about Ron Davies is that he...

I know it's not going to happen but I wish people would just ignore Vogt. He's digging his own hole, leave him to it. I worry that the more attention is drawn to him the more likely it is that Merryn's family and friends will be hurt by his lack of empathy. He may believe everything he says is...

Just what I was thinking of :)

I think a subgroup with headache would need to be very carefully defined. I think a problem with a migraine subgroup is that it's such a common condition anyway. To what extent are the headaches people with ME have migraines, or a different kind of headache? My experience of headaches (of...

I'm really glad they got NIH funding, it all sounds like useful stuff and very interesting. I'm looking forward to publications. On a side note - I like that Dan Peterson is still sticking in there with us - not a quitter. He's going to need an "I told you they were sick!" t-shirt.

That's headway ! Many years ago we used to get the same recognition when ordering pizza. We took that as a hint to stop eating pizza for a bit :laugh:

That's really good news

Thank you MeMarge, and thank you too to the others who were willing to represent S4ME and put their names forward.

To treat some diseases, researchers are putting immune cells on a diet By Mitch LeslieMar. 29, 2018 http://www.sciencemag.org/news/2018/03/treat-some-diseases-researchers-are-putting-immune-cells-diet

Exciting!! I hope everything progresses smoothly.

I love that beach!

This thread makes me uncomfortable; especially in the light of there being another thread about things Jen has said in tweets. The cumulative effect is not something I would want to experience, and it's unfortunate it's about a fellow pwme. edit - brevity

JB complained of one individual who was repeatedly posting Unrest up on Youtube and said that had consequences for the funding of Unrest advocacy in the UK. That's not 'tarring everyone with the same brush'. I didn't hear that.