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Didn't get a reply to my letter asking my MP to attend (she didn't) but have asked her to watch the debate or read Hansard. Holding out some hope as she signed the NICE EDM Tried drafting something for reporters but ended in a mess due to cog function. Is this still worth pursuing? or wait til...

90 patient letters submitted

Nicky Morgan - made a point about shortness of debate and need for wider debate in HoC - something to push for

She's bloody briliant

My MP has not replied to me, so I've written again using @Sasha's letter. She didn't reply to my NICE guidelines letter either. At least my previous Conservative MP always replied. :rolleyes: If I don't see her on the video of the debate I'll write again asking her to watch it.

This is great. Unfortunately I've already sent my own poor attempt.

On the whole I like the report, though I do wonder what I'm missing.. Considering half the committee were Conservatives (party of government, therefore might be expected to be less critical) it was better than I expected. I know!! :facepalm: So ridiculous and stupid.

Ideally we would have more: I would like to see a expert PR/Lobbying/Media offensive such as Valerie Eliot Smith has proposed. If she didn't get anywhere in trying to unite the ME community in the UK towards that I don't think it'll happen though. We're up against big guns and a big gun of our...

Selection of CFS group seems lax to me, but interesting that their findings seem consistent with Naviaux's hypometabolic study. Would this be worth repeating with larger groups and more careful CFS selection/same criteria as Naviaux?

I don't believe in "I am only a mum" :). Thanks for posting the link to your blog - it's great to have feedback from another perspective. Also, a warm welcome to the forums! If you'd like to you can post a little about yourself here: https://www.s4me.info/forums/introduce-yourself.18/

The full report is now available. I've also added these links to the post at the start of the thread. PIP and ESA assessments: Full Report https://publications.parliament.uk/pa/cm201719/cmselect/cmworpen/829/82902.htm pdf version...

No it's not - your english is very good!

Example of secondary gain from false illness beliefs = Simon Wessely getting a Knighthood.

You can only do your best, @Joh. I'm sorry if my comment was insensitive.

It's good the letter is saved. If it were me I'd spread about it in full as widely as possible. It's a gem.

Thanks for letting me know Arnie Pye - I've reposted and it's working for me now

Maybe the full report will have more information as to how the DWP collated the initial sample group candidates; but it seems that all of the sample were starting a new claim : Footnote 2 of the Interim Headline Findings gives a link to this Ipsos MORI/DWP (2017). Personal Independence Payment...

PIP and ESA assessments: Claimant Experiences https://publications.parliament.uk/pa/cm201719/cmselect/cmworpen/355/35502.htm pdf version: https://publications.parliament.uk/pa/cm201719/cmselect/cmworpen/355/355.pdf PIP and ESA assessments: Full Report...

Article in the Guardian Friday Feb 9th 2018 'Substantial minority' of disability claimants failed by system – MPs https://www.theguardian.com/politics/2018/feb/09/disability-claimants-substantial-minority-failed-by-assessment-system-mps-committee

yes, both in general practice/primary care and in specialist/consultant led clinics