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As do all cults.

Agreed. Also agree that the Oxford criteria should be retired, and any studies based on it removed from the evidence base.

And if they can't get a result using Oxford, the weakest of all criteria, then they won't do any better with more stringent criteria.

Which no doubt is one of the goals. Helps in reducing medical service use, thus saving money, and they will crow that proves how effective it is and how wonderful they are.

My pick.

The whole UK establishment has been co-opted, compromised, and corrupted by this appalling nonsense, sometimes willingly, and allowed it to become firmly embedded at the core of governance. Almost none of them come out of this looking good, and the whole outfit is obviously unfit for its...

Stopped there. This is just code for 'I am going to make up any old shit I want'.

I have a bad feeling about this. The medical profession in the UK increasingly looks like a cult, and that never ends well. No disrespect to those in it trying to do the right thing.

"...in response to a slight increase in symptoms..." Trivialising and dismissing the patient and their experience.

Any doubts about the intentions and character of both Vogt and Sharpe have been put firmly to rest today. Just a pair of rabid dogs. Seems to be a core requirement. Inquiring compassionate minds need not apply.

Try this link. https://b1ad200d-a-62cb3a1a-s-sites.googlegroups.com/site/pacefoir/pace-trial-participants-experiences.pdf As a general rule you only need to use the part of a link up to the question mark (usually found immediately following the file format, in this case .pdf). In some cases...

You say that like it is a bad thing. ;)

I wish, when I first got sick, that somebody had helped me manage my irrational expectation that the medical profession would be competent and ethical.

Of course, none of this would be a problem, if the anonymised raw data was available for others to analyse.

As with PACE and their post-hoc revisions to outcome thresholds, the problem is not the use of alternative definitions and thresholds for outcome, it is the failure to also report the results of the original outcome protocol that is the problem. Exploring alternative outcome definitions and...

A modified form of the London criteria that has never been tested or used in any other study. So it is a useless sub-grouping exercise. Purely for show, IMHO.

This is important. It is one of the main ways propaganda works. The audience is led to a single conclusion, typically without it actually being stated, and left to make the final logical step for themselves, while being flattered along the way that they are making an objective independent...

A regular general health check for ME patients is a good idea. One of the more serious consequences of ME symptoms is that they are likely to mask the early symptoms of other unrelated diseases. How many serious diseases, including potentially fatal ones, start with a vague pain or tiredness, or...

..., power, and glory, and you will rarely go wrong.

Agree with this. There is a serious case for a special one-off dedicated injection of funds to kick-start the ME research process. We are not playing on a level field. We are starting from a long way back. That needs to be addressed. Offer the money and career prospects, and they will come.