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  1. Sean

    Tricia Pendergrast et al on housebound versus non-housebound ME-patients. Study correctly described?

    Ah, Snowy, your cynicism is coming along nicely. You will make a fine old curmudgeon. :thumbup: This is a good point to get to, where the risks for the still uncommitted of throwing their lot in with an existing school/faction/theory are becoming obvious and well-known. Nobody likes backing a...
  2. Sean

    Prognosis of ME/CFS – by David S. Bell, MD

    This compliant personality type (or possibly people who are apparently compliant to avoid displeasing their therapist/assessor, and often for very good survival reasons), is no doubt described by those therapists/assessors in more positive terms like 'having the flexibility to reassess their...
  3. Sean

    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    They certainly used to be very common when I was growing up (1960s-70s), and no doubt were over prescribed. But it is also true that they still have their place. A relative of mine had persistent nasty tonsil infections for years, and went through hell with them, and endless antibiotics...
  4. Sean

    How do we partner with Pharma?

    The way to partner productively with Big Pharma is to buy a controlling interest, then they will do whatever you tell them. Anybody got a spare trillion dollars down the back of their couch?
  5. Sean

    Prognosis of ME/CFS – by David S. Bell, MD

    The reason the BPS crowd don't use real examples of genuinely recovered patients is the same reason they don't report genuinely positive objective outcome results. They don't exist.
  6. Sean

    (Not a recommendation) Alastair Miller: The prognosis of CFS/ME

    Starts with a blatant lie, and just keeps digging.
  7. Sean

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    Again, there has never been an objection to this kind of CBT or psychotherapy, for those who choose to use it. Depends if the reasons for sleep problem are because of poor sleep hygiene (i.e. behavioural drivers), or other reasons that are not amenable to standard behavioural management...
  8. Sean

    Suggestions for research that creates new data?

    This is a complementary companion thread to this one. This thread is to list suggestions for research that creates new data (as opposed to the other thread which lists suggestions for research that uses existing data). The kind of research that generates or tests new hypotheses or...
  9. Sean

    Guardian: "Don’t listen to Gwyneth Paltrow: keep your coffee well away from your rectum"

    :laugh: "I was cleaning up the bedroom in the normal healthy way – stark naked, with a lubed up turkey baster full of used coffee grounds – when I tripped over the spare gimp suit and fell backwards..."
  10. Sean

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    Lucky that there has never been any objection in the patient community to that type of support, for those who wish to use it. We are not anti-psych. We are anti-pseudoscience.
  11. Sean

    Is the NIH/CDC going to use the right PEM definition for all their future research? Do patients need to act? Deadline 31 Jan

    Thank you for your response, @Leonard Jason. Following on from the comment by @Snow Leopard: My concern is that subjective self-report is inadequate and that we need a good objective measure for PEM, but one that doesn't require PEM to be provoked by stressing the whole organism. We need an...
  12. Sean

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    Which is why they must be stopped. This slippery subjective anti-evidence madness goes way past just ME and MUS. We are just the means for them to impose it on the wider world. That is truly pathetic and contemptible. :grumpy:
  13. Sean

    More Junk Science - Anthony William aka Medical Medium

    Anthony William is either a deluded fool, or a charlatan and scumbag preying on the sick and desperate. Which is it, Mr William?
  14. Sean

    "Time for Unrest": ME article by Nathalie Wright

    Wessely will not survive a comprehensive collation and cross-referencing of his own words and work. -------------------- https://www.researchgate.net/publication/20602098_Management_of_chronic_post-viral_fatigue_syndrome Note the date on that paper, 1989. Don't you just love the certainty...
  15. Sean

    Action for ME terminates, by mutual agreement with the University of Bristol, contract to fund Crawley study

    If you treated a hamster like she treats children and their families, you would have the RSPCA hard on your case. :grumpy:
  16. Sean

    Guardian: "Don’t listen to Gwyneth Paltrow: keep your coffee well away from your rectum"

    Deviant. You clearly need some Coffee Butt Therapy. :p
  17. Sean

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    Seriously, is that the best you can do? How do you know it is a genuine patient or BPS critic behind that account? You seem very ready to uncritically accept that it is. If those claiming harassment and threats are serious then they should be asking for a full public inquiry into the matter...
  18. Sean

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    Wouldn't surprise me if a few of her acolytes from the BPS cult, along with some general trolls with no stake in this game but nothing better to do with their lives, were deliberately stirring up trouble by pretending to be harassing threatening patients. In fact I would be very surprised if...
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