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Also in the article, people's weight blamed as the cause of all kinds of health problems. I've seen a number of articles on various medical issues, where this is the case. Easy to blame the patient. What can be missed is what's truly causing the health issue.

Still, and again! It seems reassurance and/or dismissiveness are often the first things that spring to the lips. Yes, basic neurological testing can be normal and an MRI show up some problems. What I don't know is why. If these basic tests miss significant problems, such as noted in the...

If only we could pick the right lottery numbers with our thoughts! ;)

Thanks for this @Adam pwme At first look, this is very interesting for pwME. EBV plays at least a part in causing some ME. It did for me. Some pwME have repeated acute flares of EBV. Or, it remains active for a considerable length of time. We know pwME share a number of symptoms similar to...

To paraphrase, the researchers are saying little is known about LC, but there are no "Serious Adverse Events" expected by putting study subjects through GET and CBT. This seems to violate the precautionary principle, which those in emergency settings use: make sure it's safe before you...

First off, it appears they are dismissing biomedical care for people with more than one physical illness. Or, they are promoting adding psych care to bio care for people with more than one disease. Why would an integrated approach (ie. psych + bio) be needed for as an example, a person with...

I very much agree - backup, that's one important thing doctors want. Government documents are good. Institutions with good/big reputations are good. Recognized journals with good/big reps are good; except for one I can think of.... ETA: state, province or territory policy/ guidelines; not just...

Absolutely! It would be great to see comparisons of many groups such as ME, COVID, MS, FM, Chronic Lyme Disease (if I have the term right) and others. ( I used to dream of a normal, healthy, productive life; a fulfilling life. Now I dream of ME research!)

I very much hope that with the similarities between these 2 groups, our community does benefit. That has been the hope and understanding. I don't have numbers to back up my hunch but it seems the trickle of ME research is less, now that COVID research is prominent. I hope our researchers are...

I am concerned that despite the huge amount of research and money being poured into many aspects of COVID, ME may still be left out in the cold. Knowledge and works on post viral syndromes seem to be coming on more, which is encouraging. But it would be good to see mainstream, government funded...

This also begs the question, why can't this sort of research be more aggressively or earnestly addressed for ME? Oh yeah, I know why....

@Milo Thanks for your comments. However, I do understand the roles for these agencies. Of course these agencies are mandated to report on public health threats. What I was pointing out was that Long COVID received very little mention by PHAC and other government agencies. In my opinion, not...

Not directly messing with scientific evidence, but some political leaders in Canada have removed all public health measures except vaccinations. The presumed message is the pandemic is over. Medical experts repeatedly state the COVID pandemic is not over. Canada is in its 6th wave, but...

I forgot an incident that three people around me reminded me I played a major role in. Nothing problematic or anything like that about the event, but it was concerning to have no memory of this, when it impressed others, but I can't dredge it up. I forget what I'm going to get or do in another...

Another problem with communication between pwME and physicians is some pwME have slowed thinking. Cognitive problems also cause memory issues, and word finding difficulties. Physicians never seem to notice me mixing my words, slurring my words, unable to find the right word, unable to reply at...

When your stigmatizing "cfs" diagnosis goes before you, in a letter from your GP's office to specialists' offices, you're often hooped before you even see specialists. That is if you can get a referral for further consults.

@Samuel I very, strongly disagree with the misleading, dismissive misnomer "chronic fatigue syndrome". It's caused immeasurable harm and suffering. Early on, no doubt due to the stupid and offensive name "cfs", a doctor told me everyone feels like I do. That was, and is completely ridiculous!

"trouble being understood". I would add, physicians and others have trouble relating to the symptom descriptions. This is even though most people have had a flu at some point. I don't know who said it first, but a good description of ME goes something like: having a flu, at the same time as...

I heard a bit of a CBC Radio interview with a physician with LC. She is very unwell, and unable to work. I know it's early days, but still concerning that the LC phenomenon is looked at as an oddity, a curiosity, and a rarity. Something very hard to believe. LC goes against the norm, and...

Despite multiple positive tests, indicating repeated current EBV infections, as well as other repeated, and confirmed infections, pwME are viewed as suffering from a psychological illness. Would not there be some thought given to this being a physical disease? It seems the easy way out is to...