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That must be so frustrating for you. And, how awful to have another layer of illness in addition to ME.

Thank you @Wyva for noting there are test results for both current and past EBV and CMV infections. I thought so, but wasn't completely sure. My ME had a step-wise, or gradual worsening. With one of those early steps, I found out I tested positive for EBV for a second time. At that time I...

Interesting, thanks @ahimsa. For my n=1, I had EBV confirmed in 1985. I had to ask for the test. Testing was not offered to me. I had repeat positive EBV tests some years later as well. Yonks ago, in the '60s I had Strep throat - had a test for that. I've had lots of flu and cold viruses -...

A ME specialist I saw, said IBS may preceed ME.

It would be interesting, and perhaps progress to know what body systems these supplements are acting on. Some pwME say CoQ10 helps with energy.

Some of Jason's descriptions of PEM happen to me everyday, several times per day, but I don't count myself in PEM, until I crash. To my knowledge, unrefreshing sleep in Jason's PEM list is ongoing for PwME, not just as a part of PEM. Conveying the difference between how a pwME feels, and how a...

I tested positive for EBV for an extended period of time. It seemed to me this was the active form. I believe tests can show the difference. But, I could be mistaken. :thumbsdown: ETA: deleted "to", added "for".

I agree with you @rvallee, that being rational has been turned into a mental illness. An example additional to the fear of a terrible illness, is grieving the loss of a very dear loved one for a couple months. This has been seen as a mental health problem, not an accepted, normal reaction. And...

Thanks for this, @Mij However, Vitamin D3 seems good for everything. Well, I exaggerate, but there are a lot of studies looking at Vitamin D. This supplement, ( and sunshine) seem to be good for many things.

Thank you @Mij Good article. Same old story with our governments though. All along Canadian federal government data releases on the news, have counted those diagnosed with COVID, and those recovered. There has been very little official mention of LC, and certainly not in the daily counts...

So, you're not socially adjusted if you have a very debilitating physical disease.... RCTs by definition are more controlled than clinical practice. Everything is supposedly more structured, including researcher and study subject engagement. Thus allowing researchers to perhaps more frequently...

I agree with all who said have a medical visit as soon as you can, and take a photo or video before to show a doctor, if your daughter's symptoms are not present when you see a doctor. How worrying and frustrating for you! I hope you can get some help with this. Adding more health or other...

Yep!

@JemPD, exactly! Well said.

Good your vet treated your dog in a timely manner. Sadly, some people don't get the same belief, understanding and prompt treatment as some pets do.

Agreed. :thumbup:

"The reliance on one subjective symptom"...., now where have we seen that before? :wtf::banghead::banghead:

You might want to ask the Solve ME/CFS group. There was a CFIDS of America survey in about 2009 that asked questions along these lines. Although, I can't recall precisely. For some maybe unfamiliar with CFIDS of America, it came before Solve ME/CFS.

I think your idea is a good one @Arvo. The words "inordinate" and "deficit" come to mind. As in energy and time deficit. How about ETD? Energy Time Deficit. ( To take your suggestion and modify it a bit.) The Canadian Disability Tax Credit notes, and I paraphrase: an inordinate amount of time...

Decades ago a MD, not my regular doctor, noting my symptoms asked if I had ever hit my head. This had never happened to me in any significant way. I really wish we had pursued this avenue. Nothing may have come from testing, but on the other hand there might have been some findings that cast...