Search results

  1. Sly Saint

    ME Association magazine summer 2019

    What I don't like is the almost preacher like, somewhat patronising tone of the whole article; King James Bible Jesus saith unto him, Rise, take up thy bed, and walk. and I agree with others that it does rather smack of the 'fear avoidance' stuff
  2. Sly Saint

    Acupuncture and other traditional Chinese medicine news and discussion thread

    same author as this article https://www.s4me.info/threads/article-verywell-exercise-for-fibromyalgia-and-chronic-fatigue-syndrome.7474/
  3. Sly Saint

    The Province (Vancouver): Better treatment needed for 77,000 British Columbians with ME

    Complex Chronic Diseases Program (CCDP) We provide care for patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and symptoms attributed to Chronic Lyme Disease. from FAQ pages: Is the treatment model CBT...
  4. Sly Saint

    Acupuncture and other traditional Chinese medicine news and discussion thread

    Merged thread Article: Verywell :Acupuncture for Chronic Fatigue Syndrome; What Research Shows Not a recommendation I haven't been through the scientific links in this article but I suspect that the 'evidence' maybe tenous at best. there is the option to vote on the articles content at the...
  5. Sly Saint

    Action for M.E. 2019 AGM and conference 15th October 2019

    Tuesday, 15 October 2019, 10:00 AM - 4:30 PM same venue as last year Bishops Square, London, E1 6AD, United Kingdom So highlights are results of their Big Survey, and Dr Nina Muirhead https://actionforme2019conference.eventzilla.net/web/event?eventid=2138742076 (link to discussion of last...
  6. Sly Saint

    ME Association magazine summer 2019

    Thanks Andy for posting the full article. We don't often hear from the MEA other than through Charles Shepherd. I think there are a number of contradictions in the article; "I suggest you get a grip of yourself, leave your sick bed and go for a walk. So I did. Within two hundred yards I...
  7. Sly Saint

    Unethical work must be filtered out or flagged (Nature)

    "awareness of the importance of research ethics has grown" hmm yes, you need a REC number that shows your study is service evaluation and therefore exempt from ethical scrutiny......... just need to find one you used before. :emoji_bug::emoji_ant:
  8. Sly Saint

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    Not a recommendation; no idea who this person is but found his blog The Perils of Popular Demand Science Another one who has swallowed KK's diatribe hook, line and sinker. https://rwmillard.com/blog/
  9. Sly Saint

    Fundraising: Manchester (UK) Primary Care research: Exploring Trauma & Distressing Experiences Following Medical Encounters.

    eta: details here https://www.wonderful.org/fundraiser/highlightingtraumafrommedicalencounterswithme-b89a2139 eta2:
  10. Sly Saint

    The Mind-Body Syndrome Study (2019) Maroti et al

    his Chronic Fatigue Syndrome project: https://www.researchgate.net/project/Chronic-fatigue-syndrome-ME-CFS
  11. Sly Saint

    The PACE trial video series by A Broken Battery

    on this twitter thread someone mentions about children; could a tweeter post a link to @Adam pwme other video on children with ME.
  12. Sly Saint

    The HOME study - Michael Sharpe s CBT for the elderly

    possibly detailed in the 'service manual', which unfortunately does not appear to be accessible.
  13. Sly Saint

    Chronic pain is not a disease (Psychology Today, 27 May 2018)

    Confounding and the Biopsychosocial Model by Chris Centeno, MD / June 11, 2017 Interesting article. full article here https://regenexx.com/blog/confounding-biopsychsocial-model/ (warning; there are ads on this site.)
  14. Sly Saint

    On the Air - two podcasts on ME with Amy Mooney

    @PhysiosforME these podcasts (although about the situation in the US) may be of interest.
  15. Sly Saint

    Perrin Technique

    I have a copy of his book; would suggest that, if you haven't already, you read it particularly regarding his 'theory' of what causes ME which has, as far as I know, no research/evidence to support it. As Trish said, like the LP, it has its 'followers', but similarly it is becoming a bit of a...
  16. Sly Saint

    SCOPE : Q&A about chronic fatigue or Myalgic Encephalomyelitis (ME/CFS) with Dr Charles Shepherd

    this was a few days ago questions and Dr Shepherds answers here https://community.scope.org.uk/discussion/62274/q-a-about-chronic-fatigue-or-myalgic-encephalomyelitis-me-cfs-with-dr-charles-shepherd
  17. Sly Saint

    Treatment for Gulf War Illness (GWI) with KPAX002 (methylphenidate hydrochloride + GWI nutrient formula) - Holodniy, Kaiser Aug 2019

    Full title Treatment for Gulf War Illness (GWI) with KPAX002 (methylphenidate hydrochloride + GWI nutrient formula) in subjects meeting the Kansas case definition: A prospective, open-label trial (revision 2) https://www.sciencedirect.com/science/article/abs/pii/S0022395619302651 (not...
Back
Top Bottom