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This PPM rubbish is another complete waste of time and money. From a report done by age uk: full report here https://www.ageuk.org.uk/globalassets/age-uk/documents/reports-and-publications/reports-and-briefings/care--support/age_uk_discharge_from_hospital_briefing_june_2016.pdf

protocol for the HOME study now published pdf here...

Interferon-alpha-induced depression: Comparisons between early- and late-onset subgroups and with patients with major depressive disorder Carmine Pariante 2019 full paper here https://www.sciencedirect.com/science/article/pii/S0889159119300352?dgcid=coauthor

I think it is an additional bit of podcast; transcript here https://www.s4me.info/threads/the-guardians-science-weekly-podcast-2-november-2018-what-role-should-the-public-play-in-science.6474/page-10#post-190216 eta:cross posted with SallyC

Nice job; maybe the bottom line should be something along the lines that the 'amended' review is due to be published by the end of next week. So it remains to be seen whether the authors have adequately addressed the issues or if Cochrane have bowed to pressure by those (such as Professor...

Don't let 'them' forget Severe ME day is an initiative of the 25% ME group for the severely affected. It is held annually on 8th August to commemorate Sophia Mirza’s birthday and it’s purpose is to remember and raise awareness of those deceased and severely affected by ME. Sophia Mirza (1973...

Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019 https://www.meassociation.org.uk/2019/08/severe-me-day-a-call-to-act-with-truth-and-integrity-by-greg-crowhurst-08-august-2019/

This article is still on their website. However they did update their pages on CFS in March 2019; https://www.healthywomen.org/condition/chronic-fatigue-syndrome#tab4 all fairly OK but then we get to 'treatment and prevention' and yet throughout the new updated information it says that very...

"Since our show, the details of the complaint have been made public" the details were sitting on the Cochrane website long before their 'show' if only they had bothered to look eg Feedback submitted, 3 June 2016...

well yes, he is an expert on the subject of spin and dodgy abstracts in research papers, so for once the SMC actually chose an appropriate subject for him to comment on.

If I've understood........Dr Myhills test doesn't work. full paper here https://www.nature.com/articles/s41598-019-47966-z

Review article MDPI Diagnostics Received: 22 May 2019; Accepted: 15 July 2019; Published: 7 August 2019 full text here https://www.mdpi.com/2075-4418/9/3/91/htm (not familiar with any of the authors)

similarly seems to rely on Gordon Lubitz 2009 'promising outcomes of an adolescent Chronic fatigue syndrome inpatient program', Journal of Paediatrics and child health hardly conclusive

yes; it gets used here also https://www.s4me.info/threads/fatigue-exacerbation-by-interval-or-continuous-exercise-in-chronic-fatigue-syndrome-2016-sandler-c-llloyd-a-barry-b.10588/#post-187586 not the ICC but 8. Fukuda K, Straus SE, Hickie I, Sharpe MC, Dobbins JG, Komaroff A. The chronic...

you'd think so, but it looks like, generally speaking for ME/CFS patients, the version that is used is the one used for Mental Illness (which is quite different) see https://www.s4me.info/threads/more-pace-trial-data-released.9401/page-8#post-168768

Journal of Adolescence Volume 75, August 2019, Pages 123-129 https://www.sciencedirect.com/science/article/pii/S0140197119301289 again using this proxy CDF (chronic disabling fatigue). Is this now a formal diagnosis? Or are they maybe, finally, realising that CDF does not equate to ME or CFS...

see also Maximus and Atos https://en.wikipedia.org/wiki/Work_Capability_Assessment https://en.wikipedia.org/wiki/Personal_Independence_Payment DWP figures show PIP complaints against Atos and Capita continue to rise June 27 2019...

Its good that they are doing this and I agree that Very Severe should be reinstated, but as discussed on other threads eg https://www.s4me.info/threads/me-severity-scales-discussion.9503/ none of the existing scales (and I really don't like the MEA one) really address the 'classification' (ie...

Mod note: This discussion has been split from a thread in the members only area. Recently saw this on the Bristol Chronic Fatigue Syndrome/ME Service website (under Research)...