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Are there expert doctors who can make sensible decisions on use of resources though? Seems like everything is a paint-by-numbers “pathway” these days.

Let’s face it, they don’t think they should have to engage with the membership. And they don’t want to.

It does if you have to balance the books

He won’t reform the NHS into an efficient and effective institution in 5 years with this global economy. Also isn’t he Sir Starmer?

It’s not in any powerful institution’s interests to actually resolve the problem. That’s why people just make these attempts so it looks like they are doing something. See also - benefits, education etc. Hope that helps!

I’d just send it to the Charities Commission. And those twitter people Nic? Peter?

@Peter Trewhitt And having an unsolicited upsetting reply

Yes his linguistic acrobatics are very agile, he must be up and out of bed early each day, limbering up the dictionary! The “not entitled” excuse was a good effort, but ultimately still wrong.

That sounds lovely. So you just keep logging on every day in the hope that your question is added and some sub-par whitewash answer accompanies it.

These matters would be great for @ME/CFS Skeptic to cover (if not done so already)

Nah, he wouldn’t hack it! Tubby Isaac’s would have him for dinner, and if you sell things you need to be polite otherwise people don’t come back! I think he might need to look at specialist services - those Japanese cafes where the staff insult you?

“Delusions of grandeur” Neil? He’s not a bit circumspect nor respectful.

The post by CS clearly stated that CS had taken part in similar trials, CS is the authority on all things ME research

They said at the agm that they were setting up a working party or something. I think they tried to frame it as “well, we heard there was some concern so we are taking it seriously and looking into it properly” when of course, the actual issue isn’t whether people should move, or not, but whether...

The agm seemed to demonstrate that there is wider agreement with Riley. Look at the “we must investigate whether movement is useful” project being set up (to validate Neil’s article) the poor comms on the date of the agm, hour long trustee introductions….

Yeah I wig out when I’m ill, overwrought, overtired etc arms or legs just fire out. I thought it took more effort to keep them still and that was why? Anyhoo well done for being the bigger person @Trish they don’t deserve you. [refers to Trish's open letter to the MEA, which was the topic of...

Just compare it with Sonya Choudhury’s response to the 24 page “DIY care plan”. It’s not just that she withdrew it from the website, her manner and way of engaging with the community was so respectful, understanding and we felt heard and understood. Contrast with “get up and move/ I’m in charge...

Yes I have suggested to change it before. I’ve seen people on socials react really badly to the name - the community need things to be straightforward, not “double speak” we have enough of that with the likes of “pacing up”.

Just northern! But yes.

Bobbins Also small study that wants a larger study <500 people for <2 months, 35% drop out rate, this is the best he’s got?