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I love my TENS machine and find it has been incredibly helpful. Physio who originally suggested it (for chronic post operative pain, not ME) claimed it was only worked for 25% of people. For once, the odds were in my favour! :)

Yes! THIS and when you wake up you actually feel worse

Thank you @Invisible Woman . Glad to know i was making some sense! Excellent point about seeing GP's - I shall try and remember to make this point to mine when I see her next. None of it is good enough and it is doubly frustrating as it has gone on so long and shows little sign of changing.

I can totally understand that, and my GPs are clearly drowning in work, but I find it frustrating that once again ME comes bottom of the pile and it's not seen as serious enough to be priority reading. With no treatment and no way of identifying who might develop it, surely more than having it...

I actually did this and got the ME Association to send a copy to my Practice. One GP told me he was too busy to read it and another said it was still on her desk to read...

This was also reported on Radio 4 Today and the NHS representative advised the these "hidden" waiting lists are published regularly and that the majority of patients recover significantly. Only one of the people from this article was included in the piece.

I haven't listened to this yet but I will as I find the all or nothing approach to some of these drugs frustrating. After surgery I refused to have morphine when I came home as I knew it could be addictive and didn't want to risk it. My GP has provided short term courses of Tramadol when...

For those who don't do/like pacing; what management strategy - if any - do you apply? Genuinely curious as to how different people manage their condition.

I've just bought a copy of this. Am having a quick skim read before a proper in depth study but so far it has a wealth of information and seems to be answering a lot of the questions I have about pacing. I should also point out it is A4 and 1/2" thick!!

I had it suggested to me that "finding one's edges" might be better than boom&bust. Quite like it.

Oh :thumbup: thank you :)

What report is this please? And why is MS worried about it?

This is excellent ; please can you send it to the guardian editor and strongly suggest that they publish it?!

I had IBS before I got ME but ME made it So. Much. Worse. so I don't quite fit any of the above. However I saw a fantastic dietitian* who suggested the low FODMAP diet which has helped massively. Still have problems when I crash or my anxiety is particularly bad though, but not quite as bad as...

Myself and @It's M.E. Linda have been in touch with our MP about ME since before the debate and were the source of his quote about it in this debate. 10 of the 11 people who turned up at out first ME friendship group meeting last year all reported being turned down for at least one benefit on...

I have been prescribed Venlafaxine and Pregabalin. I was totally unable to tolerate the latter and while the former helped with depression the side effects and withdrawal were *awful*. I had to take stuff for vertigo when coming off it and I was on a dose so low it wasn't considered to be...

Ah. right sorry. Yes - the author is making the point of being both ignored and patronised on the point in her letter to the BJGP. Good to know it's not just us patients noticing though??

Posts crossing as I have just posted the letter. "There is a ‘medical’ explanation for many ‘unexplained’ symptoms: medicine. However, doctors are being actively trained to disbelieve patients’ experiences3 and to assume ‘unknown aetiology’ and/or ‘psychosomatic’ causes." interesting indeed.

(replying to Wonko) Actually the author is arguing against this and is making the point that doctors are getting it wrong. She has also written to the BJGP (British Journal of General Practice) about it: https://bjgp.org/content/69/681/163/tab-e-letters#the-right-stuff---or-the-wrong-stuff...

I saw this article (which is mostly about antidepressants) on the Human Givens Institute and thought it worth sharing as it is written by a psychotherapist...