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  1. JellyBabyKid

    Ignored, blamed, and sometimes left to die – leading expert ME explains origins of a modern medical ‘scandal’, Chris Ponting, The Conversation, 2024

    Apparently so https://www.theguardian.com/books/2020/sep/12/susanna-clarke-i-was-cut-off-from-the-world-bound-in-one-place-by-illness
  2. JellyBabyKid

    UK: Daily Mail: Half of women fear the NHS treats their health as a 'second-class issue'

    The question remains; how do we change the system so that disbelief isn't the default response to anyone ?
  3. JellyBabyKid

    UK: Daily Mail: Half of women fear the NHS treats their health as a 'second-class issue'

    or my personal favourite; Would you like something for your anxiety (I have medically induced ptsd after almost dying 3 times)
  4. JellyBabyKid

    UK: Daily Mail: Half of women fear the NHS treats their health as a 'second-class issue'

    Thas was my conclusion, and felt it was rather wandering into the pope being catholic and bears using woods levels of reporting. Of more relevance is; why is the NHS (and DWP) default setting to automatically disbelieve those trying to use their services in the first instance and how do we...
  5. JellyBabyKid

    UK: Daily Mail: Half of women fear the NHS treats their health as a 'second-class issue'

    And yet psychology tells us that we are social creatures and altruism arose because we were concerned with the good of the tribe. I am amazed how often the default setting is disbelief, especially when so many times this has been proved to be both wrong and harmful
  6. JellyBabyKid

    UK: Daily Mail: Half of women fear the NHS treats their health as a 'second-class issue'

    Half of women fear the NHS treats their health as a 'second-class issue', damning poll reveals https://www.dailymail.co.uk/news/article-13959565/amp/half-women-nhs-health-second-class-poll.html Archive link to avoid giving the Mail clicks https://archive.ph/IBv32 "A third of women said they...
  7. JellyBabyKid

    What do people want me to ask Sonya Chowdhury on Friday

    Curious. I was not aware of this, I thought it was just me. Can you point me in the direct of more information on this at all please? Thanks
  8. JellyBabyKid

    UK: BMJ article: Severe mental illness: 120 people die in England every day from preventable conditions, psychiatrists warn

    Does anyone have access to the full article please? I am hit with a log in page. Thanks.
  9. JellyBabyKid

    UK Guardian: ME left me bed bound for nearly five years. A potted plant helped me rebuild my life

    This. Exactly [expletive deleted] this. Funny how these articles continue insist on missing the point; why does anyone need to be trapped in a darkened room for five years?! And yet we are supposed to say "oh, isn't that nice - she can do 20mins gardening":banghead:
  10. JellyBabyKid

    UK Guardian: ME left me bed bound for nearly five years. A potted plant helped me rebuild my life

    Given that we always sound like conspiracy theorists anyway, doesn't the timing of these articles seem a little ...odd? Given how much Maeve's mum has been all over the news and is being taken seriously, that suddenly there is a rash of positive thinking/recovery memoirs..? I see the gruinaid...
  11. JellyBabyKid

    What do people want me to ask Sonya Chowdhury on Friday

    Are you able to share please @InitialConditions ? This would be massively helpful to the Billboards team in replying to NIHR's response that I am involved with, when able. Thanks!
  12. JellyBabyKid

    What do people want me to ask Sonya Chowdhury on Friday

    I have posted on Twitx as well, but I think it would be useful to ask why the elearning is a slideshow and doesn't make use of such amazing patient produced resources such as Dialogues for a forgotten illness, or the wealth of podcasts about lived experience of ME and LC or the extensive library...
  13. JellyBabyKid

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Thanks so much @Robert 1973 "...the coroner finds the situation so serious that she is preparing a section 28 prevention of future deaths report, the delivery plan must include an audit of all health trusts to discover if they are following Nice recommendations for the care of people with...
  14. JellyBabyKid

    BPS attempts at psychologizing Long Covid

    This was really good, thanks for sharing.I have shared on twitx and tagged The Rest Is Politics accounts
  15. JellyBabyKid

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Based on history so far, he will be the first person the NHS ask for his "expert" opinion, which is a oxymoron to start with Well he has so far... Until someone actually sees that every illness/syndrome he has successfully psychologised has been shown to have a biological explanation and he...
  16. JellyBabyKid

    Increased hunger during PEM crash

    I was just making lunch and realised just how incredibly hungry I was - form long before lunch time - very loud rumbling, which i rarely have! I am currently battling regular exhaustion, PEM and ptsd - the combination of which has made my ADHD sooo much worse and I am absolutely ravenous...
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