Search results

Tagging in @Karen Hargrave of #ThereForMe and @Aaron of the Billboards project DM me if I can help? See @Chris Ponting 's list of needed research projects in the post this is a reply to

Yes! I have had to have an afternoon nap since I had lung surgery (one of the contributors to me ME) 14 years ago and it is not an option - my body will insist at some point and if I try not to, or have over done it I wake up at 1am for at least an hour - and this totally disrupts how I feel the...

Apparently so https://www.theguardian.com/books/2020/sep/12/susanna-clarke-i-was-cut-off-from-the-world-bound-in-one-place-by-illness

The question remains; how do we change the system so that disbelief isn't the default response to anyone ?

or my personal favourite; Would you like something for your anxiety (I have medically induced ptsd after almost dying 3 times)

Thas was my conclusion, and felt it was rather wandering into the pope being catholic and bears using woods levels of reporting. Of more relevance is; why is the NHS (and DWP) default setting to automatically disbelieve those trying to use their services in the first instance and how do we...

And yet psychology tells us that we are social creatures and altruism arose because we were concerned with the good of the tribe. I am amazed how often the default setting is disbelief, especially when so many times this has been proved to be both wrong and harmful

Half of women fear the NHS treats their health as a 'second-class issue', damning poll reveals https://www.dailymail.co.uk/news/article-13959565/amp/half-women-nhs-health-second-class-poll.html Archive link to avoid giving the Mail clicks https://archive.ph/IBv32 "A third of women said they...

Curious. I was not aware of this, I thought it was just me. Can you point me in the direct of more information on this at all please? Thanks

Thanks!

Does anyone have access to the full article please? I am hit with a log in page. Thanks.

This. Exactly [expletive deleted] this. Funny how these articles continue insist on missing the point; why does anyone need to be trapped in a darkened room for five years?! And yet we are supposed to say "oh, isn't that nice - she can do 20mins gardening":banghead:

Given that we always sound like conspiracy theorists anyway, doesn't the timing of these articles seem a little ...odd? Given how much Maeve's mum has been all over the news and is being taken seriously, that suddenly there is a rash of positive thinking/recovery memoirs..? I see the gruinaid...

Thank you

Are you able to share please @InitialConditions ? This would be massively helpful to the Billboards team in replying to NIHR's response that I am involved with, when able. Thanks!

Thank you and good luck Friday

I have posted on Twitx as well, but I think it would be useful to ask why the elearning is a slideshow and doesn't make use of such amazing patient produced resources such as Dialogues for a forgotten illness, or the wealth of podcasts about lived experience of ME and LC or the extensive library...

Thanks so much @Robert 1973 "...the coroner finds the situation so serious that she is preparing a section 28 prevention of future deaths report, the delivery plan must include an audit of all health trusts to discover if they are following Nice recommendations for the care of people with...

This was really good, thanks for sharing.I have shared on twitx and tagged The Rest Is Politics accounts

Based on history so far, he will be the first person the NHS ask for his "expert" opinion, which is a oxymoron to start with Well he has so far... Until someone actually sees that every illness/syndrome he has successfully psychologised has been shown to have a biological explanation and he...