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That's a fantastically detailed and interesting blog, with lots of links to support statements.

It's pretty well written, with a decent identification of issues e.g. Need to feel understood: nobody knows how I feel inside; Struggling with isolation: I need other people's support; ‘Sense of self’ in strain: the illness has changed me as a person Facing uncertainty: my life has become more...

I agree that epidemiological research is important, for example what is the illness trajectory? I think Covid-19 presents an enormous opportunity, in terms of a large new cohort of people, likely greater funding and the potential to use existing medical cohorts. Wherever there are large...

It's not really answering the question, but to me almost more important than what is researched is how it is researched. Replication is part of that. We must not have more poor quality research (e.g. studies that are unblinded and have subjective outcomes) that suggest that useless treatments...

Maybe it's difficult, but the fact that there is little real information to give to patients must not be hidden. Just as eager clinicians offering all sorts of woo can distract their ME/CFS patients from feeling disgruntled, so can patient organisations. And we need to feel disgruntled, in...

Snow Leopard linked a presentation on the placebo response here: Viewpoint: “It’s All in Your Head”—Medicine’s Silent Epidemic TMS is often claimed to be useful for depression. But it may well just be a very effective placebo. Here's an image from that set of slides - it did no better than a...

I agree with your query @duncan. It doesn't sound as though the trial will have a control arm and blinding. Which means any result won't really tell us much. Did SolveME choose this study?

Translation CBT as a treatment for MUS has been extensively studied. (Subtext: But the studies don't actually prove that CBT works in treating MUS, so we'll make a sentence that has the words 'best' and 'treat' in it, and hope that readers read this as saying that CBT is good for MUS.) We're...

Noting the names of these people who have such difficulty with the concepts of correlation and causation. M.E. Loades a T. Chalder bc A. Smakowski c K.A. Rimes bc a University of Bath, UK b King's College London, UK c South London & Maudsley Hospital NHS Foundation Trust, UK

A study of people with multiple sclerosis found that 26% of them qualified for a diagnosis of Major Depressive Disorder. In that context, this Smith , Crawley, Loades paper suggests that their sample of young people are coping incredibly well with an awful disease at a time of life when being...

With an attendance fee of 300 pounds, I can't imagine many of us will be listening in. Does anyone know a paediatrician who can justify the fee and let us know what is said?

When even soft noises feel like a knife to the eardrums https://www.statnews.com/2016/02/18/noise-induced-ear-pain/ This article talks about pain receptors in the ear, and suggests that classifying hyperacusis as psychosomatic is out of date thinking: It would be good to understand what is...

I was listening to an interview the other day with someone who was deaf and was given a cochlear implant. She found the sensation of sound overwhelming and, although she tried hard to get used to it, she couldn't. Her quality of life was greatly diminished, she got headaches, became irritable...

Maybe you aren't persuasive enough? Not enough chat about all those secondary benefits. ;)

Posts relating to a first hand account of participating in a BPS trial have been moved here: Reports from participants in GET and CBT trials

We have discussed this group previously. My conclusion was that it was run by people who were well-meaning but captured by BPS and straight-out pseudoscience ideas, leading them to focus on providing courses that had people with ME/CFS examining their personalities and behaviour in order to...

Posts about sources of UK Covid-19 prevalence data have been moved here: Covid 19 Related Issues - Support and Chat Room

Northwestern Law Professor Steven Lubet writes about his correspondence with the McMaster University Psychiatry Department - "Can McMaster University Medical School Psychiatrists Be Trusted to Treat ME/CFS Patients?" link and discussion here BPS attempts at psychologizing #LongCovid

It's discussed here @5vforest Functional autoantibodies against G-protein coupled receptors in patients with persistent post-COVID-19 symptoms, 2021, Wallukat et al