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I don't think you'll find many people here as most of us are not in the states. I do know a pwME in the US who I think had consultations with Klimas and who I think is a member of this forum. Message me if you want me to put you in contact with them.

Thank you.

Thanks Andy. Got that but was hoping to find their full published report analogous to AfME's: https://www.actionforme.org.uk/uploads/pdfs/Action-for-ME-annual-report-2020-2021-updated.pdf

Does anyone happen to have the most recent Annual/Financial/Trustee Report from the MEA? It's not on their website.

Great video - one of the best I've seen. Winston has real skill. Maybe we can use it to our advantage. I'd like to see a UK version.

However, I noticed he's not hosting the next talk, either.

Ahh. I completely forgot about this.

Yes, there's a Q+A box on the Zoom talk. Whether they look at it is probably up to the host. Last night SW didn't take questions from the audience.

It has passed, Trish. It was last night. I agree that it would be good to have someone from our community attend these meetings, or even join BACME.

But I think SW has been hosting this recent round of talks, and I'm wondering if we are to read anything into his absence next week.

I assumed SW would be hosting, but yes it is Roger Kirby. Simon must have other engagements!

Moved posts - Royal Society of Medicine in Conversation - interviews Next Wednesday: https://www.rsm.ac.uk/events/philanthropy/2021-22/phq14

https://www.bacme.info/civicrm/event/info?id=15 BACME networking event: A Conversation About....NICE

I have just noticed the Queen Mary PACE trial page has been removed or moved. This page was full of info on PACE and had links to various documents, such as trial materials. https://www.qmul.ac.uk/wiph/research-projects/current-projects/projects/pace-trial.html This page was active a few...

https://me-pedia.org/wiki/List_of_deaths_caused_by_myalgic_encephalomyelitis_or_chronic_fatigue_syndrome

I remember coming across this Memorial list https://www.ncf-net.org/memorial.htm Obviously, I can't vouch for its accuracy, and the caveats discussed above apply; that is, this is a 'died with' list, though I have no doubt some on the list died due to ME.

Exactly this. Just an extention of what has been going on in our community for decades now.

It seems like the covid version of Myhill's mitochondrial test score: take lots of different measurements, then combine them into some sort of score to get a totally meaningless number that apparently indicates the level of severity.

There's a thread on Patterson here: https://s4me.info/threads/usa-incelldx-dr-patterson-new-lab-service-offering-cytokine-tests-to-covid-longhaulers.20434/ Wouldn't trust him an inch.

Just bumping this. The PSP is keen to get applications for the final workshops from carers and healthcare professionals (in addition to ME patients). You can apply for take part in the workshops until Tuesday 11th January, here: https://www.psp-me.co.uk/take-part/