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I’d just send it to the Charities Commission. And those twitter people Nic? Peter?

@Peter Trewhitt And having an unsolicited upsetting reply

Yes his linguistic acrobatics are very agile, he must be up and out of bed early each day, limbering up the dictionary! The “not entitled” excuse was a good effort, but ultimately still wrong.

That sounds lovely. So you just keep logging on every day in the hope that your question is added and some sub-par whitewash answer accompanies it.

These matters would be great for @ME/CFS Skeptic to cover (if not done so already)

Nah, he wouldn’t hack it! Tubby Isaac’s would have him for dinner, and if you sell things you need to be polite otherwise people don’t come back! I think he might need to look at specialist services - those Japanese cafes where the staff insult you?

“Delusions of grandeur” Neil? He’s not a bit circumspect nor respectful.

The post by CS clearly stated that CS had taken part in similar trials, CS is the authority on all things ME research

They said at the agm that they were setting up a working party or something. I think they tried to frame it as “well, we heard there was some concern so we are taking it seriously and looking into it properly” when of course, the actual issue isn’t whether people should move, or not, but whether...

The agm seemed to demonstrate that there is wider agreement with Riley. Look at the “we must investigate whether movement is useful” project being set up (to validate Neil’s article) the poor comms on the date of the agm, hour long trustee introductions….

Yeah I wig out when I’m ill, overwrought, overtired etc arms or legs just fire out. I thought it took more effort to keep them still and that was why? Anyhoo well done for being the bigger person @Trish they don’t deserve you. [refers to Trish's open letter to the MEA, which was the topic of...

Just compare it with Sonya Choudhury’s response to the 24 page “DIY care plan”. It’s not just that she withdrew it from the website, her manner and way of engaging with the community was so respectful, understanding and we felt heard and understood. Contrast with “get up and move/ I’m in charge...

Yes I have suggested to change it before. I’ve seen people on socials react really badly to the name - the community need things to be straightforward, not “double speak” we have enough of that with the likes of “pacing up”.

Just northern! But yes.

Bobbins Also small study that wants a larger study <500 people for <2 months, 35% drop out rate, this is the best he’s got?

The advantage I have is that I can’t really follow the ins and outs. also ascribing motives and retconning that parts of documents were copy pasted etc are allegations and theories. These are not the same as facts, and it’s the facts which require CC investigation.

It is an explainer specifically a “two sentence summation” was requested.

The MEA should already have notified the Charity Commission that there has been an incident. Others should notify the CC that MEA hasn’t been operating as it should, and ask them to investigate.

It’s unclear which AoA’s were drafted in 2013 and which were adopted in 2014 there’s about three versions in play. TL:DR the MEa should have asked permission from the Charity Commission to pay trustees it awarded contracts to. It didn’t do so, claiming it didn’t need to citing various AoAs -...

I really don’t mind if it’s incompetence or corruption, it’s for the Charities Commission to work out. Amendments agreed at meetings held illegally don’t hold anyway, so for NR’s sake let’s hope he can prove appropriate notice was given in 2014 for the AGM. It wasn’t in 2024.