Search results

Yes I’m better writing and editing my own text than trying to dictate. Interestingly I had a job years ago where I went from typing my own stuff to a team where they used dictation and a typist. I had to write it out then read it as I couldn’t do it in my head without seeing the words written...

There must be some complaints procedure and if not maybe if you think your member of Parliament might listen write to them??

https://www.bbc.co.uk/news/uk-51221915 Various people have been are being tested in UK including Scotland and Belfast

Mmm there are some changes in emphasis but it very much refrains from any explicit criticism of the NHS approach. I don’t have the energy or inclination to highlight detailed criticism at this point. I feel it is weak on heart rate monitoring basically leaving it to the NHS guy to say it...

I wasn’t a child but I went undiagnosed for 10 years due to a combination of having a depression diagnosis and my regular episodes of viral illness not being severe enough to be picked up as post viral fatigue. If you’re not acute onset it is very easy to go undiagnosed. I’m sure this could be...

It’s great to get help with design and sorry to throw in criticism but just pointing out that the background on this one is rather busy and using that for the text makes the characters a bit fuzzy to me. Given there are known visual difficulties with ME perhaps the text can be reconsidered...

Hopefully this is the start of a trend ETA sorry to jump in with sarcasm couldn’t resist :whistle:

I hope some BACME people will be attending they would benefit from having their eyes opened to the big picture.

Interesting post. I’m mild/moderate ME and I find whether to bother with supplements quite difficult to judge. I used to take quite a few including carnitine and I’ve cut down to ones I’m most certain are useful. Carnitine is on ive stopped and will try again.

Thanks I’m pretty sure I’ve not got POTS. My orthostatic intolerance kicks in after ive been standing still for a few minutes rather than immediately on standing. And if I’m moving rather than queuing I don’t get that overwhelming feeling of needing to sit down

Ok thanks @Marky definitely not something I’ve heard of being checked out in the U.K. I’m already on hypertension meds including an ACE so not sure anything could be done. I’m going to check out my own lying sitting and standing BP before going for my annual hypertension review and consider...

If you don’t mind me asking how come this has been tested- was it at your instigation or did a doctor ask for the tests? I think I’ve probably got this but never bothered raising it with Drs as it seems there’s nothing other than hypertension meds which I’m already taking

Old fashioned biomedical approach says the man promoting the health benefits of jumping on a piece of paper and shouting stop :wtf::wtf::wtf::wtf::wtf:

As well as understanding the process and criteria for claiming on your insurance policy you need to make sure you understand the process of leaving your employer. Important not to resign voluntarily. The employer will be dismissing you grounds of Ill health in which case they may make a...

Yes wot @Simon M said. I’m afraid the detail in the classifications seems overwhelming to my brain. I used to be quite good at working through detailed content like this but ME has affected my ability to concentrate enough to take it in properly.

Thanks so much for the work you’ve done over the years @Dx Revision Watch. And well done for getting this decision

Good point @Mithriel and it’s telling that they had to give extra training beforehand. Would have thought this client group deserve fully trained counsellors who can adapt to provide a suitable approach rather than CBT. I suspect what they got was better than my sausage machine experience of...

Maybe I’m being excessively cynical today but has anyone in the whole field achieved anything yet that’s worthy of an awards ceremony at a gala dinner?

Cystic Fibrosis

Could be tinnitus?