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  1. NelliePledge

    Invest in ME: UK Charity Pledges £500,000 for Research into ME in Norwich Research Park

    I had cynically assumed the reason they were going down the FMT/gut route was probably because they are in the east of England and that’s what the people at UEA are interested in working on rather than it necessarily being top priority as an area for ME. But I see they’re in Hampshire so I don’t...
  2. NelliePledge

    Changes in circulating microRNA after recumbent isometric yoga practice by patients with ME/CFS: pilot study, 2019, Takakura,Oka,Sudo

    To be fair if I was settled in my house rather than in the process of moving out/in and various refurbishment activities and all the unavoidable physical activity that goes with that I would be likely to be able to manage to do this sort of exercise. As it’s lying down it looks quite achievable...
  3. NelliePledge

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Probably got another pet SMC influenced person churning this out
  4. NelliePledge

    Invest in ME: UK Charity Pledges £500,000 for Research into ME in Norwich Research Park

    I’m a bit confused by this. Do they already have this £500k from the funds they were collecting for a U.K. rituximab trial? I gave donations towards that and to be fair if I’d known it was going to end up going to FMT I would have given my cash elsewhere. If they haven’t already got the...
  5. NelliePledge

    ME [briefly] in University of East Anglia Video

    I didn’t see any mention of CBT in the video @Tilly
  6. NelliePledge

    Reduced limbic microstructural integrity in functional neurological disorder, 2019, Diez et al

    But if there’s physical evidence it can’t be functional in their sense anymore can it? I thought Functional means without evidence of physical abnormality?
  7. NelliePledge

    Constant yellow phlegm (with poll)

    The only time I ever had yellow phlegm was two decades before ME when I got bronchitis that lasted about 7 weeks and took 2 lots of antibiotics to clear. I do get noticeable catarrh when I eat cow cheese although I’ve read this hasn’t been proven to be connected . I definitely don’t get it...
  8. NelliePledge

    Understanding neuromuscular disorders in chronic fatigue syndrome [version 1; peer review: 2 approved] - Jammes, Ritornaz Nov 2019

    We don’t seem to hear much about research in France but I’m sure this team have published before. It sounds interesting I’m hoping it’s worthwhile.
  9. NelliePledge

    Reduced limbic microstructural integrity in functional neurological disorder, 2019, Diez et al

    I would love it if they have decent evidence of physical differences.
  10. NelliePledge

    Americans dying young at alarming rates, Washington Post

    but they call it lobbying so it’s ok really......
  11. NelliePledge

    Americans dying young at alarming rates, Washington Post

    But the people who control the organisations that profit from the status quo may not also be the ones that would profit from a different situation so they use their financial resources to exert influence on policy makers to prevent change.
  12. NelliePledge

    Open Medicine Foundation (OMF) fundraising

    But that’s how most of what they do happens. If they didn’t ask for money they’d be nowhere.
  13. NelliePledge

    Abnormalities in the urine of people with ME/CFS? A clinician asks for feedback

    I find when I take Alpha lipoic acid supplements I get a similar effect to asparagus not exactly the same smell but similar.
  14. NelliePledge

    Characteristics of Fatigue: Examination of passages from the Bible, 2019, Ben-Nun

    Was wondering if Lazarus had had a pep talk from TC to help him change his unhelpful illness beliefs.
  15. NelliePledge

    Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique -Antcliff, Keenan et al Nov 2019

    How can you make a ‘scientific paper’ out of holding a workshop. People across the entire economy are holding workshop type meetings every day.
  16. NelliePledge

    Case Report: Acute oxalate nephropathy due to high vitamin C doses and exocrine pancreatic insufficiency, 2019, Fijen and Weijmer

    Checked before looking website currently says 2-6 g. he was taking 500mg vit C as well as consuming quite a lot of high oxalate food - different nuts and a litre a day of almond milk
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