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Me too. Or if either or the combination does turn out to do anything, so I can try it knowing that I'm not just risking nasty side effects and possible deterioation for nothing.

Was this in fibromyalgia? And can you say more or is this unpublished work you can't discuss?

All I know about this research group is what JE said about Paul Morgan here:

@Jonathan Edwards this is another study from Paul Morgan's group.

Abstract looks interesting, decent number of participants. Interested what people think.

Noting the reservations in the above posts (really hoping the responses aren't flukes, at least! ) If the responses and nk data are indeed real I would still have thought that occams razor would suggest that the separation is due to drug action. Do we have data on how patients with other...

Yes. Someone who would go to this length to prevent any criticism of PACE being published might not much like the idea of biomedical research funding...

The fact that Wessely is still acting like this behind the scenes in 2026 while proclaiming to be retired from ME research is disgraceful. This is why I get angry when people downplay his role in this and turn their nose up at attempts to expose him.

Any idea when we'll see your age of incidence paper? I'm really interested to read it.

That makes me think there's more of a chance the NK thing is about drug effect than a marker of subgroups or something mechanistic. If those numbers in non responders are really low and dara needs NK cells to work surely the simplest conclusion is that dara just isn't effective when NK cells are...

One of the responders had ME/CFS for 35 years iirc so it's unlikely she was under 40. Also I don't think the NK threshold for response, if real, was particularly high for the average population, I seem to remember non responder counts were particularly low. But I could be misremembering.

Surely while 'the answers' implies an answer biomedically, 'the solution' implies a solution to the biomedical/treatment issue AND the care and support crisis, therefore negating the need for a forth line? I understand the need to get something about care in there but if the purpose is to draw...

If as Chris Ponting has talked about, a GWAS was actually done 15 years ago, and findings properly followed up on, we might all be living very different lives.

Yeah I think you're right there. In scientific circles solution will probably come across as JE has used it. I think my concern is that a broader audience might not understand that it means 'understand enough of the mechnism that we can design effective treatments'. But other than outright...

I like this, but think it should be millions of lives for clarity. Also is solution the best word considering its...20th century history? Just throwing it out there but other than that I think this is a powerful way of putting it

I just wonder if finding 'an answer' is only understood to mean finding breakthroughs that lead to treatments if you understand the language used around it by researchers etc on here? But maybe looking for treatments sounds a bit too much like a phoenix rising type approach I don't know.

Should it be 'there are no treatments'? It fits better with 'help us look for them'

I was just thinking this. I think it is much more powerful this way. A succinct mission statement. I agree that support is important (God knows I need it!) But from a messaging point of view I think it's better and more focused this way.

I don't remember this from when I studied the WWI poets in sixth form. Just looked it up, its very affecting.

Maybe it should be something like help us find them and help us campaign for support for people with ME/CFS in the meantime? So it's like an action we're doing. The wording isn't quite right but still.